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Blogs about: Rett Syndrome

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My CD Update

spiritdances wrote 14 hours ago: Our friend Margie helped us get our grant papers ready This is an exciting day.  Our friend Margie c … more →

Tags: CD Production, Disability Awareness, Music & Art, piano compositions, Rett Syndrome Intelligence

Happy Thanksgiving!

spatzgear wrote 1 week ago: Fellow friends, family, friends yet to be-   I was surprised the other night as I drove down th … more →

Tags: www.spatzgear.com, Spatzgear, Autism, fundraising, HOPE, Thanksgiving

Music Frees Me2 comments

spiritdances wrote 1 week ago:   My Songs   We are talking with many people to help get my CD ready to record.  There are a lo … more →

Tags: Disability Awareness, Music & Art, my faith, Rett Syndrome Intelligence, Understanding Rett Syndrome, Writing Memoirs, composing for piano

Down Syndrome – A Possible Treatment in Sight?

rettsyndrome wrote 1 week ago: William Mobley, the newly appointed chairman of the Department of Neurosciences at UCSD published a … more →

Tags: General, Department of Neurosciences at UCSD, Down's Syndrome, neuropinephrine, Rett, Rett Syndrome Research Trust, RSRT, William Mobley

In Your Words or Theirs...

spiritdances wrote 2 weeks ago: I had an amazing last few days. On Sunday I shared my writings with the group in our community. It w … more →

Tags: Disability Awareness, Poetry, Rett Syndrome Intelligence, Understanding Rett Syndrome, writing, Writing Memoirs, In Your Words or Theirs

Peace, Contentment and Hope3 comments

spiritdances wrote 2 weeks ago:     A peaceful day with Beau. He was standing on a step to get behind me. I am so content today.  I … more →

Tags: Companion horse, Disability Awareness, Music & Art, piano compositions, Poetry, Rett Syndrome Intelligence, Understanding Rett Syndrome, writing, Writing Memoirs

Having Big Dreams1 comment

spiritdances wrote 3 weeks ago: I want to tell you today that I have so much hope for my life.  I remember when I was younger and ho … more →

Tags: Disability Awareness, Facilitated communication, Music & Art, Poetry, Rett Syndrome Intelligence, Understanding Rett Syndrome, writing, Writing Memoirs, HOPE

New Commercial for Rett Syndrome

spatzgear wrote 4 weeks ago: I was so impressed to see this today….. Thank you Thank you Thank you for helping spread the w … more →

Tags: www.spatzgear.com, Spatzgear, Spatz, Rett, RSRT, rhett, Advocacy, News

Is all autism related to the MECP2 Gene?

dsobsey wrote 4 weeks ago: 29 October 2009 – The relationship between MECP2 Duplication syndrome, Rett Syndrome, and auti … more →

Tags: Genetics, News, related conditions, Autism

Rett Syndrome Awareness Video9 comments

rettsyndrome wrote 4 weeks ago: RETT SYNDROME RESEARCH TRUST WEBSITE McCann Erickson graciously created this 90-second awareness vid … more →

Tags: General, Gianopulos, Mccann-Erickson, Rett, Rett Syndrome Research Trust, RSRT

Where and How Does Rett Research Happen?

rettsyndrome wrote 1 month ago: RETT SYNDROME RESEARCH TRUST WEBSITE A video presentation by Monica Coenraads On September 9, 2009 t … more →

Tags: General, Children's Hospital Montefiore, Dr. Aleksandra Djukic, Dr. Chhavi Agarwal, Monica Coenraads, Rett, Rett Syndrome Research Trust, RSRT

Rett Syndrome1 comment

Craig wrote 1 month ago: Some close friends of mine recently learned that their little girl has a debilitating neurological d … more →

Tags: Journal, girl power 2 cure, rhett syndrome

Sale at Spatzgear

spatzgear wrote 1 month ago: Spatzgear is offering a 10% off the rest of this month on all bibs.  Please contact me directly for … more →

Tags: www.spatzgear.com, Spatzgear, Autism, Bibs, spatz gear, spatzbib, spatzbibz, Bumper Stickers, Rett

My visit with Susan Norwell

spiritdances wrote 1 month ago: Yesterday I got to meet Susan Norwell at my house.  She was so respectful of me.  She works with oth … more →

Tags: Disability Awareness, Facilitated communication, Rett Syndrome Intelligence, Understanding Rett Syndrome, IRSF 2009 conference, Rett Gazette, Susan Norwell MS ED

Happy Birthday Mom2 comments

spiritdances wrote 1 month ago: When I came to this earth my Mother was 24 years old.  I was welcomed into her loving heart.  There … more →

Tags: Disability Awareness, Rett Syndrome Intelligence, Understanding Rett Syndrome, writing, Writing Memoirs, inspirational Rett Syndrome, Rett Mom

Nature meets nurture on BDNF promoter IV

dendrite wrote 1 month ago: According to Joseph LeDoux, “One of the most important contributions of modern neuroscience ha … more →

Tags: BDNF, development, Epigenetics, Gene expression, Neuron, Biology, Genetics, Michael Merzenich, CREB

Podcast: Mt. Sinai researcher interviews Monica Coenraads

rettsyndrome wrote 2 months ago: RETT SYNDROME RESEARCH TRUST WEBSITE Monica Coenraads, Executive Director of RSRT, was interviewed o … more →

Tags: 1, John Fossella, MECP2, Monica Coenraads, mount sinai, Rett, Rett Syndrome Research Trust, RSRT

podcast: Rett Syndrome Research Trust

dendrite wrote 2 months ago: It was a delight today to chat with Monica Coenraads, Executive Director of the Rett Syndrome Resear … more →

Tags: MECP2, development, Economics, Epigenetics, genetic disorders, Genetic testing, mental disorder, Mental Health, Podcast

Too much yin and not enough yang in cortical networks of MeCP2 mutant mice

dendrite wrote 2 months ago: Image via Wikipedia In previous posts, we have explored some of the basic molecular (de-repression o … more →

Tags: MECP2, Autism, development, Epigenetics, Gene, Gene expression, long-term potentiation, mental disorder, Mental Health


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