Tags » RRMS

Is knowledge power? Or does no one know what's going on?

Me and my husband have been attending a ‘living with MS’ educational session organised by my MS nurse. It’s spread over 3 weeks and we have done 2 classes so far. 327 more words



So I had an appointment today with my new neurologist. The last one I was seeing, well let’s just say we didn’t exactly see eye to eye. 527 more words

2 years, and counting.

So, as you may know, if you know me, or read this blog, around this time in 2012, I was officially diagnosed with Relapsing Remitting Multiple Sclerosis. 902 more words

September 2014 - good news/bad news

So I saw the Neurologist on Friday. What he told me wasn’t exactly what I expected to hear.

What I’d convinced myself was a relapse, he called progression. 103 more words


Summer 2014 - my typically teenage leg

My left leg’s not been paying attention to where the rest of me is going.

First of all it won’t move. No response. Then it acts shocked and bewildered that I’m moving at all. 292 more words


JCV Negative, that's positive!

Today I had another visit with Barbara to check in and get my bloods done again.

My liver function test (LFT) was quite high when I had my 1st lot of bloods done, and this was before my treatment had started. 434 more words


Aches & Pains

My wrist and shoulder hurt a lot today, I was trying to explain it to my husband, its like someone has stamped on my wrist and slammed me into a concrete wall, its like the pain is coming from inside the bone, its really weird trying to discribe it as it sounds so exaggerated and I couldn’t think of something to compare it too. 358 more words