It’s out! After 6 months, it is out! At the 20th March, I spent about a hour in the dentist’s chair and was getting my Hyrax out, teeth de-cemented and new bands applied on my molars. To b… more →
Broken Butterfly- A Crouzon syndrome survivor's blogwrote 1 year ago: At last I have received the book: Can’t wait to start experimenting. Will return with a sneak … more →
wrote 1 year ago: It’s out! After 6 months, it is out! At the 20th March, I spent about a hour in the dentist … more →
wrote 2 years ago: Last few days have been quite uneventful. I went home (home as gran’s place in a tiny mountain … more →