Tags » Systemic Lupus Erythematosus


This is weird, but true.

Whenever my emotions got disturbed pretty heavily (i.e. something upsets me very badly), the effect to my body is really instant. 35 more words


Lupus News Roundup – September 2014

It’s that time again. Every month (or whenever), I post the latest and greatest lupus and health-related news items from around the web. If you have an event or news item of interest to the lupus community, …

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A Brief Pause

The last few weeks have been a complete whirlwind of emotions, events, and discoveries. I have been tested and pushed to my wits end entirely: physically, mentally, and emotionally.I have had such conflict with myself, in what I want now and what will come to be.   1,428 more words

Arizona Walk to End Lupus Now - Sept. 27, 2014, Scottsdale, AZ

The Lupus Foundation of America’s (LFA) 2014 Walk to End Lupus Now for Arizona is coming up in 10 days.  This year the walk will start shortly before sunset, and the evening walk time will allow participants who are sun-sensitive lupus patients to take part without excessive UV exposure. 149 more words


Spoonie Life

I am a Spoonie. Some of you are Spoonies too. Some of you are reading this and feeling a sense of togetherness and community. Though our symptoms may vary greatly and our conditions may not be the same, as Spoonies we are part of a huge support group. 911 more words


Confessions - Part I

This week I was faced with a moral dilemma. One I thought I would not have to face for a few months…informing one of my many doctors of the new treatment plan I had created for myself, and how I had stopped taking all my medications and steroids altogether. 777 more words

Lupus as a business travel companion

Writing on a phone

A couple of hours ago I started writing on my windows phone from here in Portland, where I have been visiting for three days on business. 888 more words