Tags » Terminal Illness

Oh How Time Passes

Post? Way overdue. Where to start. Perhaps an explanation. I eventually become so anxious about writing a new post I am frozen, and can’t write anything. 1,252 more words

Heart Failure

The invisible disease

The symptoms of dysautonomia are often invisible.

I suffer extreme fatigue and can usually only do one thing a day. I have postural orthostatic tachycardia syndrome, which means I almost pass out if I move too quickly because my heart can’t circulate blood adequately. 150 more words

Dysautonomia

Waiting

It was an odd visit. I’d kept it short, fearing long silences, or difficult conversations, but in fact everyone was remarkably ‘normal’. Life went on not really very differently to how it has gone on for the last few years. 455 more words

Family

I have locked all words of passion in my dowry chest.
I go westward like the sun in her bridal march out to sea,
the waves carrying her flashing, vanishing train behind her. 14 more words

Poetry

Day One, Bad News - Thursday 17th April 2014

Granny has been poorly for about 10 weeks now.  Granny is my mother in law and she is 81 years old.  We are a family of five, myself, my husband and our three adorable daughters who are aged 11, 8 and 5.   539 more words

Family

Offering Prayer and Spirituality to Terminally Ill Patients

In all the caregiving I have done with my husband (cancer), brother (end stage renal failure), and mom (congestive heart failure), I have asked them if they wanted to say a prayer while I visited, or when I was leaving. 562 more words

Caregivers For Dialysis Or Chemotherapy

The Only Other CSS Survivor on Twitter

Today I’m writing in honor of Danelle Delaiso and her faithful husband, she’s the ONLY other Churg Strauss survivor I know on all of Twitter. How many other diseases can that be said for nowadays?! 403 more words

Spoonie