This is it, surgery week. Each of Ethan’s surgeries has come with its challenges. This time it is that he has to fast for 4 days. He can have liquids, but I cannot imagine that making much of a dif… more →
Benz Blogbenjamin67 wrote 3 months ago: This is it, surgery week. Each of Ethan’s surgeries has come with its challenges. This time it is … more →
benjamin67 wrote 6 months ago: As is usually the case with the medical profession, Ethan’s July 7th surgery dated got bumped. … more →
benjamin67 wrote 10 months ago: This is your gut Today has been all about meetings, one right after another. I am sitting at m … more →
benjamin67 wrote 1 year ago: I was sooooo looking forward to sleeping Friday night. The plan was to sleep in till 8 or 9. Ethan … more →
benjamin67 wrote 1 year ago: Today was supposed to be our biannual visit to the spina bifida. But as “luck” would have it, Ethan … more →
benjamin67 wrote 1 year ago: Halloween was great…blah blah blah. So this morning, I was doing the “procedure” with my spawn, wh … more →
benjamin67 wrote 1 year ago: Ethan had an endoscopy today. We were hoping the esophogitis might have gotten a little better. No … more →
benjamin67 wrote 1 year ago: So the meeting at Ethan’s school was just with the nurse. His new teacher was in training (how to i … more →
benjamin67 wrote 1 year ago: Today Jenn and I are meeting with Ethan’s new teacher and the school nurse. I call this entry the m … more →
benjamin67 wrote 1 year ago: As I write this I am sitting out on the front porch (78 degrees!) watching Ethan play with the neigh … more →
benjamin67 wrote 1 year ago: So we have been doing intermittent catheterization for about two weeks now. It is just part of the … more →
benjamin67 wrote 1 year ago: Jenn told me something last night that almost made me cry. While she was giving Ethan his enema, … more →
benjamin67 wrote 1 year ago: On a whim, I bought tickets to the National Symphony Orchestra. We needed something to break the cl … more →
benjamin67 wrote 1 year ago: I titled this entry Blur too, but for an entirely different reason. This morning a Ugandan Children … more →
benjamin67 wrote 1 year ago: I just woke up and I have not had coffee, a dangerous combination. Well I have had a couple of days … more →
benjamin67 wrote 1 year ago: So I am in an angry troll kind of mood. Ethan had his second urodynamics test today, but I could … more →
benjamin67 wrote 1 year ago: Yesterday was Ethan’s clinical appointment day. Thanks to my new best friend Maggie (our GPS); we … more →
benjamin67 wrote 1 year ago: This week we have our Spina Bifida clinic appointment (they accept VACTERL patients too). He sees 5 … more →
benjamin67 wrote 1 year ago: I want noodle salad. Watch the clip and you will understand. At my old church, I attended a … more →