Will I wake up normal? Is there a chance that this surgery could lead to unintended consequences? What if they can’t get the shunt in place and find that there is no plausible way for me to have the device inserted – does that mean this is my life forever? 1,192 more words
Hello everyone! I’m so sorry for the mahoosive delay between my last post and now. I’ve been busy with work, sorting out shunts to send overseas and had not one but two laptop disasters; 1,632 more words
Last night Brooklyn told me that he could hear creepy noises that me & Kyan can’t hear. After lots of noise making and investigating I realised the creepy noises are the gurgling of csf through his shunt. 741 more words
It got harder. It’s only now with the benefit of hindsight that I can see the pattern.
I can’t remember exactly when we first noticed that Brooklyn was leaking cerebrospinal fluid (csf), but it soon because clear he was losing quite a lot. 1,178 more words