Thursday 01 February
We saw a third and final surgeon and I am delighted to say we got some clarity. He agreed it was on the verge of being too big for hearing preservation, but it was still doable. 848 more words
You have all heard it “When life gives you lemons, make lemonade” the wise words of a true optimist. What they are saying is; make the most of the shit situation you are in, think on the positive side, life could be worse etc….you get the message. 1,171 more words
Risk facial paralysis or live knowing there is a tumour in your head?
This is what it feels my current options are. Since my last post I have had appointments with two different surgeons regarding treatment for my tumour and I have seen a Neuro-Otologist who does not specialise in surgery but of vestibular (balance) assessment and rehab. 1,365 more words
Friday 1 September 2017
I arrive at the ENTs office with my history of my soapy mouth all written down. Over the previous 6 months I had been tracking my soapy mouth and the severity of the bad taste as it was so on and off and I plotted it into a line graph: 2,074 more words
I underestimated how hard it would be to re-tell my brain surgery experience. I also underestimated how hard it would be to drive by that first neurosurgeon’s office, where I sat outside with my husband after the appointment and sobbed under the pine trees, feeling like I was counting down the remaining days of my normal life. 540 more words