Tags » ALS

June 21st 2018 One year of ALS.

Today marks the end of my first year of diagnosis of ALS.

It was a little traumatic at first, having been given the diagnosis. But as the months passed, I learned to accept it and move on the best that I can. 329 more words

ALS

Prayer team

Why would a seemingly intelligent scientific person like myself believe in prayer?  At ‘A’ levels (many years ago) I did the “sciency” ones; Physics, Chemistry, Maths and Further Maths. 544 more words

Neuroinflammation vs Neurodegeneration

I’ve been reading an interesting 2016 review article called Cytokine networks in neuroinflammation.*

Click here for the abstract.

Some of the differences between neuroinflammation and neurodegeneration are beautifully explained. 616 more words

Red Light

Mixed Feelings

My little guy swiped the tears off of his face with the back of his arm and grinned as an excited squeal squeaked out. He had just suffered through painful Botox injections in his legs, but was quickly distracted by the huge bin of toys and games that was plopped in front of him to choose from. 501 more words

Before and After

In my life before ALS I tried to lose weight and get in shape many times over. I succeeded once or twice. I had a closet full of clothes in several sizes. 972 more words

ALS

Every Note Played

I am a commuter these footloose and fancy free days.  Yes, that’s sarcasm.  Care giving rides with me all the time.  It knows when I’ve been sleeping, it knows when I’m awake, it knows that I’m trending badly and never good enough… Whee!  593 more words

Care Giving