Tags » ALS

My view on the current road to a therapy - Jan 2017 Update

Here are my current observations on the move towards for what we all want, and that is an effective therapy for MND/ALS. This post is based on reading papers including symposium abstracts. 1,080 more words


Learning Tools for OneNote

Download the ‘Learning Tools’ plugin for Microsoft OneNote.

“The Learning Tools for OneNote add-in will help everyone improve their reading and writing skills, including gifted learners, students with learning differences or a combination of any of the broad range of unique student abilities.” – Onenote.com…

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My Weekly Calls

When my mother’s aneurysm rupture occurred in August of 2004, I immediately thought of two elderly ladies whom I considered surrogate mothers: one was my mother’s sister Jean, and the other was a dear friend of my mother’s and mine, whom everyone referred to as Frenchie. 244 more words


State group looking for volunteers

KIMT News 3- The Iowa Chapter of the ALS Association has been working on getting a volunteer program of the ground for the last three years, but find volunteers isn’t an easy job. 136 more words


Galapagos to Celebrate our 25th Anniversary Part 2

After our early morning photo session on Floriana Island Monday, Stan and I decided that a relaxing morning on the boat sounded better than deep water snorkeling or zodiac rides. 1,394 more words


First Fall.

I had to call 911 tonight. It’s been a few hours since but my heart is still tight whenever I think about it too much. My dad’s ALS is progressing as normal, which means very quickly. 630 more words

The Shackles Are Off

For three long, tedious, arduous years, I stood under a big bucket of suck called an ALS diagnosis. For those of you unsure of what this is, Amyotrophic Lateral Sclerosis destroys your motor nerves: no motor nerves, no moving, no breathing , no eating. 148 more words