Tags » ALS

Double Agent

Being a caregiver for an ALS patient is more complicated than I thought.

For the first year I moved down here to be with my parents, life was relatively easy — almost boring because there was nothing for me to do. 587 more words


A Day in My Life

So you ask, “What’s so different about your day and mine?”.  Several things I’d guess if you don’t have ALS.   881 more words


3 AT Resources You Should Know

Thanks to Erin Swann, ATP, of the Maryland Technology Assistance Program for these assistive technology (AT) resources for ALS, Cerebral Palsy and more.

On this “Things to Know Thursday,” we are bringing you three assistive technology (AT) resources that are packed with useful information. 217 more words

The Call

There are moments which mark your life. Moments when you realize nothing will ever be the same, and time is divided into two parts: before this, and after this… Sometimes you can feel such a moment coming. 402 more words


Celebrating the Feeding Tube

I am jumping up and down in joy inside because my mom agreed to get a feeding tube! It had been recommended to her by the doctors 2 years ago, but she had always refused. 387 more words


Do NOT Swallow Pennies

Copper is one of many metals that humans require. But there is a narrow range, sometimes a bit ironically referred to as the Goldilocks limits, … 253 more words

Brain Immune System is Key to Recovery from Motor Neuron Degeneration

Brain Immune System is Key to Recovery from Motor Neuron Degeneration

Summary: Researchers report microglia is critical for neuronal survival in ALS.

Source: University of Pennsylvania. 811 more words