Tags » Amyotrophic Lateral Sclerosis

Have a Great (hair) Day!

As I started losing strength in my arms and hands, it was getting increasingly more difficult to use my big clunky hair dryer, so I ordered this little baby. 101 more words

ALS

Into the Valley

Kristina here, typing for my mom.  You may also know me as Daughter #2.  That’s it from me.  The rest is mom’s.

We went to our UCSD ALS clinic appointment the other day.   425 more words

ALS

My New Normal

On January 28 of this year I was diagnosed with “probable” limb ALS (Lou Gehrig’s disease, or a disorder called amyotrophic lateral sclerosis). Although my life is forever changed, I am convinced there are many ingredients paramount to overcoming the trials of any devastating disease. 186 more words

Inspiration

A Brief Update

Kristina is typing for me once more as I am still having problems with Tobii. These problems could be due to a couple of factors: the medications I am taking make me sleepy and that makes it hard for Tobii’s cameras to see my eyes. 282 more words

ALS

Motor neuron degeneration in spastic paraplegia 11 mimics amyotrophic lateral sclerosis lesions, by Denora, Smets et al, BRAIN 2016

Motor neuron degeneration in spastic paraplegia 11 mimics amyotrophic lateral sclerosis lesions

By Denora PS, Smets K, Zolfanelli F, Ceuterick-de-Groote C, Casali C, Deconinck T, Sieben A, Gonzales M, Zuchner S, Darios F, Peeters D, Brice A, Malandrini A, De Jonghe P,  Santorelli FM, Stevanin G, Martin JJ, El-Hachimi K. 398 more words

EPHE

Motor neuron degeneration in spastic paraplegia 11 mimics amyotrophic lateral sclerosis lesions by Denora et al, BRAIN 2016

Motor neuron degeneration in spastic paraplegia 11 mimics amyotrophic lateral sclerosis lesions

By Denora PS, Smets K, Zolfanelli F, Ceuterick-de-Groote C, Casali C, Deconinck T, Sieben A, Gonzales M, Zuchner S, Darios F, Peeters D, Brice A, Malandrini A, De Jonghe P,  Santorelli FM, Stevanin G, Martin JJ, El-Hachimi K. 326 more words

Publication

#WhatWednesday - What is ALS?

Today in the Canadian House of Commons, Ottawa Member of Parliament (MP) Mauril Belanger was made Honorary Speaker. Belanger withdrew his run for Speaker when he was diagnosed with ALS. 633 more words

Health