Tags » Amyotrophic Lateral Sclerosis

Researchers develop unique model for studying ALS

The UF Health researchers that developed an ALS mouse model includes Dr. Laura P.W. Ranum, post-doctoral associate Dr. Yuanjing Liu; and graduate student Amrutha Pattamatta. Credit: University of Florida Health… 611 more words


Scientists identify spark plug that ignites nerve cell demise in ALS

False-colored scanning electron micrograph of myelinated nerve fibers.

Scientists from Harvard Medical School have identified a key instigator of nerve cell damage in people with amyotrophic lateral sclerosis, or ALS, a progressive and incurable neurodegenerative disorder. 898 more words


It's Aloha, not Goodbye

While Britt was in the throes of dying, 363 days ago, I promised myself I would write a book to celebrate his memory and share the lessons of 31 years living with ALS. 1,006 more words

Revisiting HBO's VICE episode: Die Trying

The Ice Bucket Challenge of 2014, a summer phenomenon, rained millions of dollars (approximately $220M) for a cure for ALS.  The bulk of this amount – $115M – went to the ALS Association, the apparent default organization for ALS causes.   1,414 more words

Guilt in Chronic Illness

       Nothing is more wretched than the mind of a man conscious of guilt. – Titus Maccius Plautus, early Latin playwright

 I recently read a post written by a chronically ill lady* whose life is shadowed by the pernicious presence of guilt. 776 more words

A Mother's Comfort

A faded purple comforter with raggedy edges can often be found crumpled in the corner of our family room sofa.  Upon investigation, there is nothing overtly special about this blanket. 617 more words