Tags » Ataxia Telangiectasia

Unravelling neurodegeneration in A-T

I had a catch-up discussion this week with Professor Yossi Shiloh of Tel Aviv University. Yossi, who led the team that first identified the ATM gene, is one of the most important and interesting researchers in the world with an interest in A-T. 857 more words

Wishing Upon a Star - How One Chose to Spend a Day with the Browns

Hitting a Homerun – How the Browns Did it

It’s impossible at this point of the year when an NFL team can do great things and win on the field. 284 more words

Cleveland Browns

Power Solutions UK attend the AT Spring Ball

Some of the team of Power Solutions UK attended the AT Spring Ball on Friday at Chester Racecourse. Founded in 2012 by Vaughn and Joanne Rawson of… 110 more words

Running for Dan

I’ve been running since August.  I’ve always loved running, but haven’t been able to do it consistently since I had back surgery in my 20’s.  Fibromyalgia pain on top of that made running seem impossible.   291 more words


A 3 month whirlwind...

Well, it’s been three months since I received the worst news of our lives. Not much has changed, my heart is still broken for my baby and I struggle to maintain a sense of normalcy. 736 more words


The beginning...

Hope for Brian – A Mother’s Desperate Search

On December 29, 2010, our beautiful baby boy Brian came into this world and I was instantly in love. 1,120 more words