Tags » Ataxia Telangiectasia

Power Solutions UK attend the AT Spring Ball

Some of the team of Power Solutions UK attended the AT Spring Ball on Friday at Chester Racecourse. Founded in 2012 by Vaughn and Joanne Rawson of… 110 more words

Running for Dan

I’ve been running since August.  I’ve always loved running, but haven’t been able to do it consistently since I had back surgery in my 20’s.  Fibromyalgia pain on top of that made running seem impossible.   291 more words

Writing

A 3 month whirlwind...

Well, it’s been three months since I received the worst news of our lives. Not much has changed, my heart is still broken for my baby and I struggle to maintain a sense of normalcy. 736 more words

Ataxia-telangiectasia

The beginning...

Hope for Brian – A Mother’s Desperate Search

On December 29, 2010, our beautiful baby boy Brian came into this world and I was instantly in love. 1,120 more words

Ataxia-telangiectasia

Diagnosis

Steps falter, grief hangs around my neck.

“Run for us” the doctor’s say.

Wobbling, almost falling, he runs.

They are kind.

“Are you sure? Are you sure? 55 more words

Disablility