Tags » Bone Disease

Isabella & Julia

They are identical mirror twins who overcame all odds to survive their arrival.

Isabella & Julia were born at 35 weeks and 6 days. Brought into this world through an emergency c-section after the placenta was ruptured when they tried to break my water due a condition I had called Vasa Previa, which for most births is a 99% mortality rate.  1,439 more words


CRMO Awareness Month

October is CRMO Awareness Month.

Chronic Recurring (or Recurrent) Multifocal Osteomyelitis falls under the auto inflammatory umbrella. It is diagnosed by a series of eliminations. This means x rays, CT scans, MRIs, blood work, biopsies, and tests. 749 more words

Auto Inflammatory

Deklyn's Story

When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child. We went to our first medical ultrasound and our world was completely torn apart. 947 more words


Kamila's Story

Hello :) :)

My name is Kamila Anna Dratkowicz. I come from the center of Poland, Lodz city. I am interested in personalism (pedagogy, sociology, psychology) and I love to do different  kind of handmade presents which you can see on my blog: 262 more words


Aubrey’s Journey with HPP

Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And it was one of the most heart wrenching things I have ever experienced. 957 more words


Calciphylaxis – What Do We Know?

Calciphylaxis is a rare and devastating disease, affecting mostly patients with end-stage kidney disease, but also affecting patients with preserved kidney function. Due to the low prevalence of the disease, high quality evidence for the evaluation and management of calciphylaxis is lacking. 849 more words


the KWH iPad Show #13 💜 my heartfelt plea for HPP

Hello & Welcome
to my 13th episode of the
KWH iPad Show!

Today’s feature is a petition in support of
more widespread awareness of the debilitating… 594 more words