Tags » Bone Disease

FGF-23 and Sudden Cardiac Death

Cardiovascular death and chronic kidney disease (CKD) are strongly linked, but there are few clear mechanisms that explain the reason for this association. Even in the early stages of CKD, … 407 more words


Ryan’s Story

We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis ofHypophosphatasia (HPP), we were glad that we did an internet search. 1,297 more words


Mei Mei’s Story

Not long ago, Becky Raguso and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried that Mei Mei had a syndrome because of her club hands, club feet, and short stature. 510 more words


My "Normal"

Normal. It is a six letter word. It is a word that I think is used far too often, and can have such different meanings to a wide variety of people. 474 more words

Bumpy Bones

Living with Hypophosphatasia

Written by Sue Krug

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to thrive and not gaining weight, they took tons of tests and figured out I had hypophosphatasia (HPP). 537 more words


Boy Scouts of America Present 2014 Woman of the Year Award

On October 24, 2014, our own Deborah Sittig was presented the Boys Scouts of America 2014 Women of the Year Award at a gala event, … 250 more words


My Lifes Beginning Chapters

Written by Julia Child

If you sat in a class with me, there are a few things you might notice right away. I talk a lot, and sometimes way too much. 1,587 more words