Tags » Brain Surgery

Let's try this again...

Yesterday was an incredibly frustrating day – I had a 1pm check in at the hospital for a 1-3 day monitoring and testing stay to figure out some  617 more words

Chronic Illness

The Year of the Sheep

A lovely member of my support team sent me a message today that is unbelievably apropos for my life. I think it will inspire and touch you as well! 615 more words

Chronic Illness


There is another blizzard here, and with it another pain storm. Last week was a low pain week, and I got those crazy/optimistic thoughts again, “Maybe my trigeminal neuralgia is resolving itself. 547 more words

Chronic Illness

Connection and Letting Go of Our Defenses

I offer these following words to those of us who suffer from an invisible illness/disorder (i.e- a medical issue that is not visually apparent). I hope to bring a positive perspective on an issue that can be very difficult, and painful for many of us. 1,107 more words

Chronic Illness

It's electric, boogie woogie woogie

When I was a little girl I had an important imaginary friend. Well, I sort of had an imaginary friend – more a concept of an imaginary friend. 263 more words

Chronic Illness

There is a light on at midnight

Painsomnia is one of the main ways that my trigeminal neuralgia and chronic migraines play psychological warfare on me. I’ve discussed the psychological impact of being sick daily has on you. 679 more words

Chronic Illness

Zipperheads and Warriors

I learned something new today.  I learned that I am a “Zipperhead”.

I got on Pinterest.  If any of you get on Pinterest, you know how addicting it can be.   704 more words