Tags » Bulbar Onset MND

Blog 37 -Awareness Evening of MND

Blog 37 – Awareness Night of MND
Last Saturday we had an awareness evening for MND, my friend Angie and her family initiated and did the work. 556 more words

Living With MND

Blog 35. - T he Northern Star Team was shining

We had a wonderful team for the ‘Midnight Walk’ for St Anne’s hospice around Manchester city centre. We had 32 individuals donned with the shining star hats for the Northern Star team and the wheelchairs were donned with lights (thanks Angie). 830 more words

Living With MND

Blog 34 - The alternative birthday cake

I am 54 now I didn’t think I would get to my birthday but I am still living with MND. My birthday was so special as Ruth had a idea to make me a flower cake as I can’t eat cake. 524 more words

Living With MND

Blog 33 - Peace in the body prison

Blog 32

I have been to Portugal which was a treat from my sister Sue and my niece Nicola. I had a good rest in the sunshine. 492 more words

Living With MND

Blog 30 - Facing reality

It has been a lingering week as I have been in the hospice for 6 days now but first days took me by surprise. I know that I have a terminal illness but reality came from being admitted to a hospice, this pulled the flood gates wide open. 596 more words

Living With MND

Blog 28- Walking through the ancient forest

I have just got back from South Wales … We stayed in a former tavern called George House in Solva which is brilliant cottage with so many antiques and interesting paintings, it is so old but the owners have made it so easy with updated appliances. 863 more words

Living With MND

Blog 25 - A bundle of joy

It is while since I wrote a blog, the days have been so full and so I had so much to do despite that my energy is dissipating. 597 more words

Living With MND