Tags » Bulbar

PEG Gastric Tube

PEG tube or Percutaneous Endoscope Gastronomy 

This is a feeding tube, which allows liquid feed, water and medication  directly into the stomach. It is used when people have difficulty swallowing and are prone to choking. 575 more words


Blog 25 - A bundle of joy

It is while since I wrote a blog, the days have been so full and so I had so much to do despite that my energy is dissipating. 597 more words

Living With MND

Blog 24 - Accept the wheel of change

When I reflect of past events I realise that my life is changing rapidly. Last year I was planning a holiday to Croatia, I hadn’t started my blog as I was getting my head around my diagnosis, I could still eat and drink and I was independently meeting my sons in York as I could walk without falling! 624 more words

Living With MND

Blog 19 - Another Celebration !

Another cause for celebration, I am so excited to announce is the engagement of Sam and Alice, he proposed on New Years Day after midnight on the beach. 892 more words

Living With MND

Blog 17 Merry Christmas

It’s evening while I write this blog family and friends are tucking into a takeaway, I hear their talking and laughter while I smell the sweet aroma of curry curling up the stairs. 681 more words

Living With MND

Getting Organized

Lately I have been almost obsessed with getting organized. Cleaning off my desk and editing file drawers. Sorting my closet to give away suits that no longer fit – either my body or lifestyle. 365 more words



Thanksgiving has always been one of the most important annual dates for our family.  Since Roz and I first celebrated with graduate school friends as newlyweds 47 years ago, the fourth Thursday in November has meant big gatherings of family and friends steeped in lots of love and food.  440 more words