Tags » "care Services"

Q & A with Stephen Winthrop, Chair, ALS Association National Board of Trustees

Today, we sit down with Stephen Winthrop, our newly elected Chair of The ALS Association Board of Trustees to hear his thoughts on the fight against ALS and the role of The ALS Association in that fight. 966 more words


Showing Up – A Mother Daughter Journey Through ALS

By Joanne Mattingly and Shannon Kennedy

My name is Joanne. I am 74 years old and was diagnosed with ALS September 2016.

My mother, Dorothy, had ALS and died in 1986. 618 more words


Mother Daughter Team - Jennifer and Savannah Beckerman Fight ALS Together

This year, Jennifer Beckerman received the 2017 Tom Watson Award For Courage from The ALS Association Mid-America Chapter at their annual Night of Hope. Hear Jennifer’s story and how her beautiful, 16 year old daughter, Savannah, is her ultimate support. 219 more words


Jay Curtis' ALS Journey Through Poetry

Today, we welcome guest blogger Jay Curtis who shares his ALS experiences through poetry.

By: Jay Curtis, New York

I have been a proud member of the Writers Guild of America for decades. 512 more words


The National ALS Biorepository Launched – “Learn How to Participate”

By: Our Colleagues at ATSDR

One of the questions that people living with ALS often ask is – what can I do to help ALS research? 478 more words


Featured Clinician Scientist: Dr. Sabrina Paganoni – Investigating Novel ALS Therapies

Today, we are pleased to feature ALS researcher Dr. Sabrina Paganoni from Massachusetts General Hospital and Spaulding Rehab Hospital. She is this year’s recipient of the Clinician Scientist Development Award in ALS Research given in partnership with the American Academy of Neurology (AAN). 755 more words


Care Connection – Easing Stress on ALS Families

Families living with ALS are faced with a whole host of everyday challenges that can become a burden over time. The ALS Association created the Care Connection program to provide support to meet families’ needs to ultimately alleviate stress. 537 more words