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CF Resources - Children Edition

I want to compile a list of great resources to help explain Cystic Fibrosis to children. These would all be great for your children, or to take to school for classmates. 527 more words

Cystic Fibrosis

This Is When It Hits You.

I believe that death is a part of life. We all must  encounter it at some point. The death of a family member, a pet, a friend, a somewhat distant connection. 1,084 more words

Chronic Illness

Day 4

Ooo it’s Day 4! This is like a more serious version of an advent calendar.

Does everyone have an advent calendar?! 🍫

Yesterday I spoke about hospital contact time and the types of admittance into a hospital, today I am going to talk about antibiotics 💊- those things we all… 379 more words


Sabbath Season

I used to wake up, get dressed, do my medical treatments (various nebulizers and lung exercises), and go straight from my dorm to my cold metal desk in my newspaper’s office to snag a couple hours of editing before the school/work day that often lasted 12 hours — a result of having three jobs and a full class schedule. 734 more words

Day 3

Hello Day 3!!

It’s Day 3 so I’m going to move away from the diagnosis and genetic testing and talk about the actual hospital contact time. 304 more words