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Wednesday, March 25, 2015: Doctor's Updates

On Tuesday, Mom and her father (my grandfather, “Pop”) took me to my very first pulmonary appointment since leaving Children’s on 16 March 2015. All in all, the appointment took a little over two hours and I will have one of these every week for the first 3 months which puts these on me and my parent’s calendars until mid-June I guess. 256 more words

Bound By A Curse

Never deserved

Never of choice

She was locked in a Tower

No power, no voice

All she had was a window

A view from above… 427 more words

Cystic Fibrosis

Sea F

This disease

All the coughing you see

The waves on the surface

Of a tumultuous ocean

Filled with the wreckage

Of hopes dashed on the rocks

#cf