Today is Rare Disease Day and this year’s theme is: Day-by-day, hand-in-hand. I personally love that there is a strong movement of many coming together, from all corners, representing thousands of different diseases, all raising their voice together. 565 more words
Tags » Chron's Disease
Quick post because I have been very quite lately!!
I have been on steroids for the past 6 weeks, this time not for Crohn’s Disease. I become very ill before Christmas which started with a stabbing pain in my left ear, high temperature, joint pain, dizzy spells and extreme fatigue. 268 more words
During my 20’s, if you had told me that a romantic evening would look like me dressed as the Michelin tire man in layers of flannel and fleece, highlighted by (yet another) night at home and (yet another) movie rented, I would have been absolutely terrified of the future that lay ahead. 1,023 more words
Wednesday we saw the oncologist and got the results we have hoped and prayed for: the leukemia which was in remission for 7 years had figured out how to work around Gleevec and started building those leukemia cells again. 1,175 more words