Tags » Cornelia De Lange Syndrome

My little Songbird

3am Saturday morning…

Hannah: Pulls herself up to stand in her cot. “Lalalala. Mmmmmmmmmmmmmm. Mmmmmmmmmmm. Mmmmmmmmm. Mamamamamam. Guh. Guh. Guh. Ha, ha. Hahahaha. Dadadadadada. Lur. Lur. 1,676 more words


2015 – And what a year that was!

Or otherwise entitled…

To be perfectly honest, I shouldn’t wish my life away, but I’m very glad to see the back of it!

Hey! I told you I’d see you on the other side, didn’t I? 1,593 more words

Mummy Blog

Two words…

Well my lovelies, I’m guessing that this may be my last post of the year.

On the other hand, it might not.

But just in case it is and before the internet goes a bit fuzzy because everyone’s using the web and wishing Seasons Greetings to their friends and family or playing on their new ipad/iphone/other gadget, I thought I’d get in there a bit early. 2,042 more words

Mummy Blog

Quentin Crisp and the dust bunnies

There are some eccentric/unconventional people that really fascinate me – the kind of people who don’t feel the need to ‘fit in’ with society, who have their own tastes, opinions and ideas, who can just be themselves without fear, who step out into our occasionally bland, beige world that’s becoming increasingly too homogenised for my liking, and make it a bit more colourful and interesting and I think that Quentin Crisp was one of those people. 2,461 more words

Mummy Blog

Confessions of a holidaymaker


I’ve been a bit lackadaisical with my posts, haven’t I?

Well, I’m (sort of -ish ) back now. Batteries have been temporarily re-charged and, whilst life is still a little hectic, my head fog is very slowly clearing. 2,331 more words

Mummy Blog

Company Steps In To Help After Disabled Child's Wheelchair Stolen In Elizabeth

ELIZABETH, N.J. (CBSNewYork) — There is outrage in a New Jersey neighborhood after someone stole a child’s wheelchair.

Mom Keeley Pacheco told CBS2’s Elise Finch her son Andrew doesn’t like to be carried around, but she doesn’t have a choice because a thief made off with his wheelchair Tuesday morning as she was getting him ready for school at their home in Elizabeth. 337 more words


The secret’s out!


The other day, I alluded on facebook to knowing a secret…but couldn’t divulge the secret…but today I CAN, actually, divulge the secret – yay! 1,917 more words