Tags » Cornelia De Lange Syndrome

RARE

Or otherwise entitled:

Possibly the shortest post I’ve ever done!

 

Saturday 19th March 2016.

3.30am – Hannah wakes up, seemingly not feeling too perky and crying inconsolably. 891 more words

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Making memories – Our day at PNE

Or, otherwise entitled:

My kid: the most non-conformist, unenthusiastic little football mascot there’ll ever be…in the world…like, probably, ever!

It’s vital that we grasp as many opportunities for Hannah whilst we can, because we don’t know what the future holds – don’t panic, this WILL be a very happy post…I’m not going to get all morose on you. 1,917 more words

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That longed for gesture

Or otherwise entitled…

One of those celebrations that (probably) only Special Parents will really ‘get’

We’re celebrating here at Broccoli HQ as we’ve recently witnessed a glimmer in Hannah’s development. 1,671 more words

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THAT woman

“Yes, Mi Lud. Guilty as charged.

I have come to the conclusion that I am, unquestionably, THAT woman…or one of them, at least. Lock me up and throw away the key!” *throws head back and laughs in a slightly unhinged manner* 1,748 more words

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Musings from the Mothership

Hannah and I got creative at the weekend. We made a card, a special one, for a really special person. But despite loving assisting her and watching her deep in contemplation – choosing what she wanted to stick on the card or what colour felt tip took her fancy (mostly to put in her mouth and chew on *sigh*) and then making attempts to eat the card *another sigh*, I couldn’t help but feel slightly melancholy. 1,266 more words

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40 winks

Or, otherwise MUCH more aptly entitled…

Our EHCP journey

Now, before you settle down to read on, it’s only fair that I give you a bit of a ‘heads up’ about this post; because, in my opinion, it’s only suitable for: 4,284 more words

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Madame Broccolina and the crystal ball

Or otherwise (far more aptly) entitled…

A few of the anxieties and dilemmas of parenting a non-verbal, significantly developmentally delayed child

Please don’t let me confuse you with the opening title or the… 1,915 more words

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