Tags » Cystic Fibrosis

A Letter to My Mom

I want to say thank you to my rock. Mom, thats you! Since I was a little girl you have always told me, “you always fit so perfectly”. 351 more words


I Declared War on My Disease — and Won.

Is there a word for a phobia of dying in a hospital, of the disease you were born with? Medicladiseseamorbidiphobia?

I used to wake in the middle of the night, imagined visions fresh. 1,026 more words



I think most teachers are just looking forward to Christmas break the entire fall semester. I know I was! Especially since Thanksgiving, my coworkers and I held out for that glorious two week break. 605 more words

Self care isn't about bath bombs

This is an updated version of my previous post “Self Care, Why it’s Important“, I am learning everyday about what it means to have self acceptance and what privilege I have, so I felt like I needed to write a more recent perspective on the issue of self care. 1,770 more words

Cystic Fibrosis

Cystic fibrosis is still the No. 1 fatal genetic disease for Canadian kids – here's why

It was supposed to be a routine ultrasound for Hamilton resident Tammy Strong, who was at the time 20 weeks pregnant with her daughter Mikaela Bianchin in 2000. 1,227 more words


Managing Expectations

If you were to ask me ten years ago what I thought my life was going to be like…I never in a million years would have thought that I would be living in my parents house. 454 more words

Carrier Genes

Got a call from the doctor’s office today. My blood test came back positive for carrying the Cystic Fibrosis gene. I am being referred to a specialist where hubby will need his blood drawn to test for it also. 80 more words

Pregnancy Post