Tags » Deletion

What does a deletion look like for us

What makes me want to write about my son’s chromosome disorder? At the moment, it’s to bring awareness. While I write this I just comforted Gray out of a nightmare, which can happen for even a typical child. 765 more words

Our Journey

One of a very few

Gray suffers from this genetic disorder called 2p16.3 deletion syndrome. 

So what is 2p16.3 and how does it affect my son?

He is missing approximately 484 kb (kilobases or “pieces”) of the 2p16.3 region of the neurexin 1, or NRXN1, gene. 930 more words

Our Journey

Account on #Minds - Delete/DeActivate

** #Account – #Delete #DeActivate **

**** Since #Delete Account is an IMPOSSIBLE THING on #Minds – Only #DeActivate –

Therefore The Only Way is to #Deceive… 36 more words

Our Journey

Starting on Wednesday, Aug. 2, 2017, new stories will be added weekly that details the past and my current life raising two boys. One of my sons is special needs, and the other is neurotypical. 29 more words

Our Journey

A big day!

Braxton will be having surgery on Monday. He will have a peg tube placed. I’m scared, excited, nervous, anxious, just about every emotion possible.

It’s a good thing I just know it. 163 more words

Change to Lecture Capture Archiving Policy

In previous years, Timetabled Lecture Captures were retained and made available for the subsequent academic year following recording. After which time they were permanently deleted. … 403 more words

Lecture Capture

Physical Therapy

Our sweet little boy has been in therapy for the last three weeks and has been receiving home visits for about four weeks. Each appointment and visit has been doing so much for his strength. 306 more words