Tags » Dermatomyositis

Thou Shalt Get Walking!

After weeks of torrential flooding rain, the damn sun came out today and dried up all my excuses.

That meant, that I finally had to get outside and do “the 20 minute walk”. 783 more words


#RareDiseaseDay February 28th (not spon) 

Before you click off, don’t worry this isn’t a sponsored post or a “pity party” this is just the truthfulness, completely unedited, and non formatted writings of someone with a Chronic Ilness¬†that’s taking its toll. 2,022 more words


Go ahead and LOVE yourself!

Valentine’s Day brings emotions of love for some and heartache for others. For those that have someone to love and enjoy the day with it brings feelings of love, joy, and happiness. 210 more words



Reflection is defined as the act of reflecting or the state of being reflected. This can be something such as light or an image that is reflected. 313 more words


Insurance, Doctors, and Life in General


I can’t believe January has already flown by!

It seems like every day I’ve been either at medical appt’s with various specialist’s, on the phone all day with my insurance company (and the broker, and the local jeweler concerning my ring), coordinating my phone replacement (because I drop everything I touch… which apparently is bad for phone screens), teaching my step son how to drive, undertaking a huge project for Zed, and trying desperately to cross off any of my ‘around the house’ list….. 516 more words

Interview With Lyle

My latest interview was done with Lyle. Lyle is terminally ill he has been diagnosed with the following diseases, terminal pulmonary fibrosis, dermatomyositis, small fiber neuropathy, depression, and anxiety. 981 more words

Oh My - An Entire New Year!

Oh my doodlepants! Apparently I have been seriously neglecting my poor blog (and it’s like, 3 readers, lol).

That’s okay – 2016 was horrific. It was a fight, a struggle, a knocked-down-in-the-mud-and-then-get-shit-on-by-seagulls kind of year. 417 more words