Tags » Dermatomyositis

Dental Adventures in DermatomyositisLand

2 years ago I walked into my dentist’s office,  and had no idea the shitstorm   what awaited me.

After the dental assistant took the x-rays, she strut back into the patient room with an entirely different demeanor. 1,289 more words


Life Doesn't Stop to File Paperpwork

The last few days have been hard on my body. Not sure why exactly but then again I don’t really understand the disease that I have. 527 more words

Chronic Illness

A Subjective Story About Chemo

Chemo, chemotherapy, immunosuppression, everyone gives it a different name, few have the unfortunate privilege of actually understanding its true meaning. But we all cope differently and we all experience it in our own ways. 1,947 more words


The Four Agreements - I love this

I had to share this… It was by far one of the best books I’ve ever read. If only we all live by these words! Enjoy!!

Chronic Illness

Feeling Validated

The past 2 days have both been amazing days and I’m thankful for that! I’ve been finally given an official diagnosis that’s on paper and for real, not a possibility or a hunch and actual diagnosis from the Rheumatologist. 172 more words

Chronic Illness

Quirky's Quest for Connection.

I don’t know if anyone feels truly connected…as snug as a bug in a rug within the community blanket. As much as I would love to, sometimes even I find myself standing back quite content to watch from the sidelines lest I am somehow consumed or engulfed by the need or pressure to conform. 1,002 more words