Tags » Dermatomyositis

How we decided to conceive 

In October 2016 I was told by my rheumatologist that I was in remission from my DM. I worked so hard to get to this point and was so dang proud to be pain free. 675 more words


The Gift of Life

3 years ago I was experiencing my first symptoms of muscle weakness.  This started out in my arms and although I had the rash, or… 332 more words


Tapering steroids

As if being on steroids (Prednisolone) was bad enough, tapering off of them is being a bitch! Oh my god, it’s a pain in the ass, moon face is in full swing… did I have it when I was on a higher dose? 378 more words


Dermatomyositis you haven't beaten me yet! 

Coming to terms with being ill for the rest of your life is weird, but what’s weirder is other people’s reactions to it, yes I’m ill, and some days I don’t want to do anything but it’s not like I’m living in a fucking bubble, I can still pretty much do everything I used to, but I just get tired quicker, I can still go out and have fun, I just need a little longer to recover that’s all, or on the other hand I have people that have no fucking idea what I have, or haven’t even tried to learn anything about it and therefore think I’ve made it up, it’s odd, especially having something so rare, I have Dermatomyositis but my case of it, is even rarer because I’m 22 and normally you have it as a child or a lot later in life, so yeah bit of a freak of nature here 😂 but fuck it, I don’t really care, it makes me who I am, and I just have to accept that. 293 more words


Living with an autoimmune disease 

(Started writing this as kind of a motivational/informative post kind of ended up a rant, sorry about that!)

A little over a year ago I was suddenly struck down with severe weakness and tiredness, to the point that if I were to sit on the floor I could not get up on my own, at first it was very confusing and frustrating because even getting up from a chair was near on impossible, feeling as though someone was pushing me back down, but physical weakness and uncontrollable fatigue aside, the hardest thing about having an “Autoimmune Disease” is you feel pretty much alone, and when the people around you don’t really understand what it is you have or why you cant just “stand up” it can get very stressful and depressing. 520 more words


What will the future hold?

Do you see this sweet thing? This is my baby who is becoming more and more a little boy with each passing day. Although I have been sick almost all of his 3 1/2 years of life with… 485 more words



I may have a potentially fatal disease… But I am not one to get the flu or step more than once every 10 years, and let me tell you – that is one time too many. 1,589 more words