Tags » Dermatomyositis

What will the future hold?

Do you see this sweet thing? This is my baby who is becoming more and more a little boy with each passing day. Although I have been sick almost all of his 3 1/2 years of life with… 485 more words

Dermatomyositis

STREP, FLU, MYOSITIS, AND ROCK BOTTOM.

I may have a potentially fatal disease… But I am not one to get the flu or step more than once every 10 years, and let me tell you – that is one time too many. 1,589 more words

Lifestyle

Everyone Needs A Big Sister

When you visit that existential desert, do you scream for help? Or do you set up camp and hope someone finds you? For once, I can honestly say I don’t have an answer. 948 more words

Lifestyle

October 6th...the day I officially got my life back! 

Today I saw my rheumatologist for the first time since being off all of my medications. When I first arrived I actually had to check the building directory to make sure I remembered that he was on the 3rd floor. 160 more words

Dermatomyositis

25 Songs That Defined My 24th Year

In this second week of Autumn, my third week with a virus, fourth month of “livin’ la vida nada”, and in honour of me turning 25 (and year two since my dermatomyositis diagnosis) I need a break from being me.  1,315 more words

Lifestyle

10 Tips From A Nomad

After a hiatus of sorts, the bun is back. With more thoughts than ever before. Moving is an incredibly educational life experience. If you ever feel like you need to learn a thing or two about life, yourself, and faith in general – I recommend moving… Preferably to another country ;) 1,271 more words

Lifestyle

A little bit stronger

Can it be? Is it possible? The time has finally arrived that I am no longer on any, that’s right, ANY medications! Zero, zilch, nada! I have been Methotrexate free for almost 5 weeks now, Prednisone free for 8 months, and Plaquinil free for a year. 338 more words

Dermatomyositis