Tags » Dysautonomia

Disease Fatigue

I am tired of being tired. I am sick of being sick.

No, there was never a time when I was the opposite – happy and well-rested to be sick! 1,101 more words


When honesty isn't the best policy

I’m a pretty transparent person who will discuss most things with just about anyone who shows genuine interest, including my medical history. It’s a part of who I am and a part of my day-to-day, and I genuinely enjoy studying the science and biology behind it. 388 more words

My Guide to Las Vegas with POTS and Other Forms of Dysautonomia

So you want the bright light city to set your soul, set your soul on fire, eh? Here is my little guide to surviving with POTS. 1,322 more words

This does not define me.

Warning! This is raw. I’ve battled about whether or not to post but then I decided maybe someone else needs to hear my story. Maybe this will encourage someone to keep fighting. 2,413 more words

"Passionate" is just another word for S.M.A.R.T.-ass

Just in case you didn’t know, people with chronic illness get “normal people” (aka acute) illness, too. I’ve been fighting a respiratory infection for the past week. 1,128 more words


Let's try this again, yeah?

It was a year and a few days ago that I made my introductory post.

I had the best of intentions to continue writing and to really make a solid place for myself online but life and illness, as always, had it’s own ideas. 406 more words

Snow daze

I meant to get on this blog all last week; getting that diagnosis was such a huge thing after many years being bounced from specialist to specialist and there is so much I want to say about all this, but my POTS and other dysautonomia symptoms have been really out of control lately and it ended up just being another one of those weeks where it was all I could do to just hang in there and get through it. 1,495 more words