Tags » Dysautonomia

I Didn't Know How Important It Was To Meet Others Like Me

I went to a lecture on Postural Orthostatic Tachycardia Syndrome (POTS) this weekend so that I could learn more about my condition, but I got more out of it than that.   784 more words

I Tried NormaLyte- Taste Test Video

Have you heard of NormaLyte Pure?  I was very excited to try it out since it was basically designed for those with dysautonomia.

I was drawn to it because I liked the idea of it being free of dyes, artificial sweeteners, and preservatives.  173 more words


If POTS had an Anthem

I found our anthem.  It speaks to so many of the conditions of this syndrome including body temperature regulation issues, inability to commit to showing up somewhere due to symptoms and flares, being upright one second then passed out another, fighting with your body one moment and loving it another, and the frustrations of having to stay home while knowing that going out will only cause more problems. 442 more words


Chronic Truth, Invisible Pain & Quiet Strength

             The tagline to this blog, and the title of this post – “The Chronic Truth, Invisible Pain & Quiet Strength” – explains everything you need to know about Dysautonomia, and other invisible diseases. 596 more words

Autonomic Nervous System

At the edge of all light 

I am officially a volunteer!

For a little while now, I’ve been trying to find meaningful activities that will help me feel as though life is still moving forward, but (hopefully) won’t cause my health to spiral downwards again. 717 more words

5k walk/run in springfield, oh...

Friends (I call everyone “friend” – if you’re reading this post, we’re friends. Even if it’s not mutual. Deal with it.), if you happen to be in the Springfield, Ohio area, or know someone who is, and do not have plans this Saturday morning, September 24th, please consider joining this 5k walk/run for Standing Up to POTS, a 501(c)(3) organization that supports awareness and research. 27 more words

Chronic Illness

Finally some good days!

I’m finally starting to feel recovered from the thyroid surgery, but still making strides.  This week has had some good days and I am happy for those!   1,114 more words