Tags » Dysautonomia

Thank you to Sara Spins!!

This week I received some fantastic news. A local non-profit organization, Sara Spins, saw my posts online and contacted me. Could they help me raise money for a service dog? 156 more words

Fundraising

The Duchess

Hey Everyone!

The most gorgeous brides!

What did you guys think of the Royal Wedding? I slept through it. Haha. But I caught up on it later. 269 more words

Invisibleillness

Kropallani on uhmaikä

Tänään oli tarkoitus tehdä vaikka mitä. Nimenomaan oli tarkoitus. Mutta kropallani on joku helvetin uhmaikä. Dysautonomia saa aikaan todella kummallisia juttuja.

Verenpaineet nyt on olleet gapapentinin loppumisen jälkeen ihan mitä sattuu. 298 more words

Yleinen

Out of Order

Hey Everyone!

I saw this quote and thought it was funny because it perfectly describes the mood I have had all week.

This past week has sucked gas. 177 more words

Invisibleillness

When Moving and Brain Fog Combine

We recently purchased a home, had a bit of work done on it, and then moved in.  We’re also hiring folks to install a pool, put in a wheelchair ramp, and update the landscaping to be water wise and bird friendly.   477 more words

Sam G and the Chamber of Somnolence

“Stare at the wall with your eyes open.”

“Close your eyes.”

“Look up and down with your eyes only five times.”

“Look left and right with your eyes only five times.” 629 more words

Miten tälläinen on mahdollista missään!?

Voi mistä edes alottaisin…

Aamulla oli aika neurolle. Aika kuulla tulokset testeistä. Ja juu, tuota… Niin…. Öööö…. 🤦

Ensin hoitaja vähän haastatteli voinnista. Otti verenpaineet. Tai siis yritti ottaa, mutta laite näytti erroria. 599 more words

Yleinen