Tags » Dysautonomia

Remember When?

Remember when I held you in my arms? You were the cutest thing around in your pink bows and little socks.  Then we fed you and you were no longer happy and smiling. 587 more words


Duke POTS Symposium and CME 2015

I had the pleasure of attending the 2015 Duke POTS Symposium a little over a month ago where Duke University Medical Center doctors and patients were presented a CME symposium on POTS and associated conditions. 253 more words


Working Progress

Working on vamping up my blog, so check in for updates on my pages. I intend to list a lot of educational resources and tips for patients like myself with Dysautonomia. 108 more words

Chronic Illness

so this is marriage...

Note: I am back from the honeymoon now, but actually wrote this post after the wedding, before the honeymoon. In the rush to get off to Hawaii, I forgot to post it. 766 more words

Chronic Illness

Chronic Illness and Infertility: A Reflection on my Personal Experience

This essay examines my experiences with a chronic health condition and infertility, as well as the intersection between these experiences.  There is much written in the press and social media about motherhood.  6,060 more words

Chronic Illness

DFO to the Pits; POTsie Frustrations


Yes, this is a POTsie posting. However, my post may seem like a rant—well, that’s because it sort of is. You are welcome to quit reading here if that does not fancy your ears. 2,501 more words

Chronic Illness

Talk from Duke Symposium on POTS

Duke recently hosted a symposium on POTS. The POTS patients in attendance, including myself, sat in awe at the room full of people trying to learn more about this illness that has sidelined so many. 1,377 more words

Erin Schwarze reblogged this on Erin Schwarze and commented:

Great Post, and great speech at the symposium as well. I am glad you have continued courage and hope invested in your journey to move forward.