Tags » Dysautonomia

Money-No-Object Objects

The Spoonie life is a hard life – no matter if it’s Multiple Chemical Sensitivity or Chronic Fatigue Syndrome or Lyme Disease or Chronic Pain, having a condition that severely limits your mental and physical capacity is all sorts of devastating. 1,051 more words



On Tuesday┬áI had to go for a flexible cystoscopy to have a look in my bladder. It was uncomfortable but everything looked okay and there isn’t a physical blockage causing my urinary problems, which leads us back to thinking it’s due to signals not being sent to my brain etc. 125 more words


One of the things I often notice when I’m in my wheelchair is that people react different to you than to ‘able’ people. Sometimes that is good, like when people try to help you when they see you’re having trouble getting something done, but sometimes it’s not so good, like when they act as if you’re mentally impaired as well. 2,136 more words


Long time, no see...

So…It’s been 6 months since I last posted a blog post! A lot has happened in the meantime and at the same time everything is basically the same. 2,213 more words


General Update

I had a cardiologist appointment today to go over how my new meds are working. I’m thrilled to say that I don’t have to go back for 6 more months. 161 more words

Life after DysConf- Another hospital visit, but not what you think

I think it’s pretty clear that I haven’t written in a while, and here’s why:

So I got home from DysConf, and really should have finished up my conference blog posts, but, to be totally honest, I got lazy. 664 more words


DysConf 2015: Sunday

So the conference is now over, which makes me sad, but it was a good wrap-up to a great weekend.

This morning we got up at the crack of dawn again (still around 7:15), to shower and have breakfast. 558 more words