Tags » Dysautonomia

Time to Find a New Gastroenterologist

It’s time for me to find a new gastroenterologist. My current, or soon-to-be prior gastroenterologist was extremely nice and took me seriously. Prior to receiving any diagnosis, he listened carefully to all of my symptoms and tried to fit everything together. 763 more words

Life is a Goat Rope

Goat rope definition: A confusing and disorganized situation, often marked by human error.

Goat rope definition from urban dictionary: When good intentions go bad, messily.  Example: Man, that’s the last time I help you move; what a goat rope. 362 more words


Learning to Love My Faulty Body

We’ve all seen body positivity posts lately. They feature people of different shapes, sizes, and colors. I find it extremely disappointing that so many of these posts about loving your body only include people whose bodies function properly. 343 more words

Ehlers Danlos Syndrome

The Art of More - pacing for control freaks

“Urgh, my back is killing me” mutters a colleague as they stomp across our office rubbing her lower back. The guy I share desk space with visibly cringes and looks at me. 757 more words

It's Been an Eventful Week

This post is probably going to jump around a lot (worse than usual, I guess, since all of my posts tend to jump around a lot). 1,151 more words

Your Brain Shouldn't be on Summer Break!

It’s been a while since I’ve posted anything in the good old Brain Gym category.  Even though it is summer time, I feel like we ought to still be using our brains probably.  513 more words


10 Things I've Learned as a Professional Patient

I’ve decided to share some of the pearls of wisdom that I’ve learned since becoming a full-time professional patient.

In the last 10 and a half months, excluding my hospital stay, I’ve been to 25 doctor’s appointments, tests or procedures, and 56 physical therapy visits.  581 more words