Tags » Dysautonomia

Hey Dysautonomia International: My anxiety is only "all in my head" because that's where my brain is!

I had a dream last night that I was in high school again. That’s never a great start to any day, so I’ll blame that for the fact that I woke up on the wrong side of the bed this morning. 1,776 more words


Dysautonomia Week - Thursday


7:00 am: – I wake up to the gentle beeping of my alarm and slowly, lazily crawl over to slap it off for another hour. 1,781 more words


Dysautonomia Fact #3

Did you know?…

83% of patients are inappropriately diagnosed with anxiety disorder or other psychological disorders before they are diagnosed appropriately.

When I was trying to get a diagnosis, I was told I had everything from a panic disorder, eating disorder, Median Arcuate Ligament Syndrome (MALS), Celiac Disease, as well as being told what I had was “made up in my head.” This ties together with Dysautonomia being misdiagnosed so often because of the complexity in nature of the symptoms.

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All the things I wish you would not say

Generally, people have been very receptive to me when I approach them with my illness. Approach is generous word for what I mean. When people find out about my condition it is out of necessity–I have to leave some place, I can’t meet up for too many times in a row, I am burning up in 75 degree weather. 1,453 more words


I visited a spine surgeon today to try and figure out what is wrong with my back. As usual, the doctor was dismissive. He ordered an MRI, but he seems to think physical therapy is the answer. 678 more words

Potsie’s Awareness Challenge

Hi everyone, happy Thursday. October is important to me since it’s Dysautonomia Awareness month. Personally, Postural Orthostatic Tachycardia Syndrome is what affects me along with millions of others around the world. 1,067 more words

Dysautonomia Awareness Day 1

For those of you that don’t know, October is Dysautonomia Awareness month. Now, I realize that I’m a few days (or 19 days) late, but I am going to be using questions posed on the Dysautonomia Support Networks Facebook page to tell my story, day by day. 293 more words