Tags » Dysautonomia

Breaking records and kicking ass!

When my physiotherapist and I discussed ways to recognise my limits to avoid the push-crash cycle, we decided to track my daily step count using a pedometer. 400 more words

An Open Letter to the Kind Doctors, Nurses, and Medical Staff

To whom it may concern,

I would like to start by saying thank you. Thank you for your kindness. Thank you for your compassion. Thank you for your time and dedication. 401 more words

Ehlers Danlos Syndrome

30 Day Chronic Illness Challenge: Day 24 

How have you managed to juggle your social life through your illness?

Brooke-

At the moment, I don’t really have an “active” social life. It is really hard to keep up with friends when how I am feeling on a given day is pretty much up in the air. 251 more words

Invisibleillness

One Year Later

July 11th was the one-year anniversary from when POTS started to have a huge impact on my life again. This has by far been the worst and longest phase I have gone through. 1,777 more words

Dysautonomia

understanding invisible illness...

Like usual, I’m behind on my blog posts. I have about 5 drafts on different topics, but have yet to find the time to finish any of them.  325 more words

Chronic Illness

10 Things Only A POTSIE will understand..

WHAT IS A POTSIE?

POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME; SOMEONE WHOM HAS AN AUTONOMIC SYSTEM THAT DOES NOT WORK CORRECTLY.

  1. Sleeping for 23 hours a day and still being tired.
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To my friends who are currently on a mini-bus, from the girl who should be there 

At any age it’s difficult to accept that your body isn’t up to things as it used to be. At 19 years old it’s been very hard to accept. 533 more words

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