There is an occasion happening in our home tomorrow. Upon reflection, as anniversaries will have us do, I realised I have not introduced us. I am Shelley. 536 more words
Tags » Dystonia
1. When was the group formed?
2 July 2011
2. How was it started?
I created a new Facebook group, called it the Australian Dystonia Support Group, and described it as ‘A place where we come together to support each other, while sharing the good, the bad and the ugly’. 671 more words
This is one of those blog posts that probably won’t interest anyone else out there, especially not very many in the 11.2-13.1 duplication region. I’m trying to figure out if there’s any link between the cause of my disorder (dopa-responsive dystonia) which is usually caused by a genetic mutation of the GCH1 gene, and the duplication that Anneliese has. 876 more words
Complex Regional Pain Syndrome (CRPS) encompasses a myriad of injury-induced pain conditions. CRPS Type I (formerly known as reflex sympathetic dystrophy) elicits in absence of any obvious nerve injury, whereas CRPS Type II (previously termed causalgia) is associated with injury to a major peripheral nerve. 1,011 more words