Tags » Dystonia

Important update! Botulinum Toxin Program and Co-payments

In 2015 new arrangements were implemented for providing or administering Botulinum Toxin to patients. A factsheet was provided to better understand how it will affect patients or consumers. 230 more words


Bionic woman in progress 😜

Hello again everyone, I’m working backwards here to catch up on the last fourteen days so I can then blog my progress in real time.  1,870 more words

Clean Eating

Movement toward a cure: UNM Health Sciences Center

The purpose of the research was to determine the frequency of medication use in patients with dystonia.

Researchers examined participants enrolled at 37 sites in the United States, Canada, Europe, and Australia through Project 1 of the… 160 more words


Interview Patricia Smith

This is the interview that was done with Patricia Smith, she tells her story in essay form. She shares her journey living with Systemic Mastocytosis, Dysautonomia, Dystonia, Eosinophilic, Eosinophilic Esophagitis, Type 2 Diabetes, Degenerative disk disease, scoliosis, and depression. 1,158 more words

Crack & Chipped

Dystonia Awareness Moment: I receive 150 units of Botox every 10 weeks by injection into my neck and upper back. I receive approximately 15 shots. First, my Doctor inserts the needle that is wired to a machine that can listen to the strength/intensity of the spasm. 241 more words


Dystonia & Pregnancy; The Experience So Far

I live with a range of chronic health conditions, when I saw those two little pink lines at 3 weeks pregnant, my first thought was how on earth my body was going to cope with pregnancy! 614 more words


No respite for mothers caring for children with a disability | CPEC - The Cerebral Palsy Education Centre

This article in The Age highlights the vital importance of caring for and providing informed support for the mothers and carers of children and adults with significant disabilities. 74 more words