Tags » Dystonia

Dystonia & Pregnancy; The Experience So Far

I live with a range of chronic health conditions, when I saw those two little pink lines at 3 weeks pregnant, my first thought was how on earth my body was going to cope with pregnancy! 614 more words


No respite for mothers caring for children with a disability | CPEC - The Cerebral Palsy Education Centre

This article in The Age highlights the vital importance of caring for and providing informed support for the mothers and carers of children and adults with significant disabilities. 74 more words


A month on Clonazepam

Hi Guys,

As most of you are aware I started my new medication alongside my Keppra just before Christmas for my seizures during the night. I thought I would do a little update on how it feels to be on these tablets after 4 weeks of the initial onset. 347 more words

January 1, 2017

New day. New Year, New Chapter!

For the last years of my life, I always start with – I want to lose 10 lbs….this is the first year that I can truly say the quest for abs didn’t make the list. 231 more words


What does transcranial ultrasound show in dopa responsive dystonia?

Transcranial sonography in dopa-responsive dystonia

Svetel M, Tomić A, Mijajlović M, et al.

Eur J Neurol 2017; 24:161-166.



Mutations in the GCH1 gene, encoding GTP cyclohydrolase 1, the enzyme critically important for dopamine production in nigrostriatal neurons, are the most common cause of dopa-responsive dystonia (DRD), characterized predominantly by limb dystonia, although parkinsonian features may also be present. 210 more words

Eur J Neurol

Fly for the Kids: A Mission for a Children's Complex Movement Disorders Program 

Have you heard about the ‘Fly for the Kids’ mission?

Neurologist, Associate Professor Andrew Kornberg at the Royal Children’s Hospital in Melbourne, is on a mission to fundraise for a Complex Movement Disorders Program to support children with Movement Conditions, including Dystonia. 178 more words



This…just this…pause for a second and remember I have dystonia.

Life’s lessons.  Every year I vow to post more, to write more, to share more and every year life gets in the way.   400 more words