Tags » Dystonia

Dystonia Europe Newsletter and the Jump for Dystonia Campaign

ADSG Down Under Jump in the Dystonia Europe newsletter! Read further for more details.

The Dystonia Europe recent newsletter is available for viewing and has updates on the Jump for Dystonia Campaign. 113 more words


Not for Me

The more the Rx works it’s way out of my system, the better I feel. Absolute relief. I can walk better, I can talk better, and I can think better… Which means, I can live better. 672 more words

My absence...

I have not been blogging lately.  The reason why is that my wife, Marla, had to have surgery recently.  She had a total shoulder replacement done.   321 more words


Dystonia and Pain Management

Dystonia can cause extreme pain! Pain can affect people with various forms of Dystonia.

The following links give more information about Dystonia pain and management. … 181 more words


“I wonder why you are having such a rough time this morning?”

I was still in bed when my husband was leaving for work this morning. I felt perfectly awful. He rubbed my arm and hit a sore spot and the unexpected pain sent me into full body jerking spasms. 606 more words

Abuse... A Doctors Get Out Of Jail Card

I hadn’t planned on writing this. Originally I was going to keep it pent-up. But the whole point of Dystonia and Me is to share with you all the highs and lows of this condition and the many battles I fight along the way. 425 more words


Tired and Scared

I keep reminding myself I’m tired which makes me more emotional, but it’s not helping much. I had my neuro appt today and came away sad and scared. 238 more words