Tags » Dystonia

A New Chapter

I haven’t posted in awhile. I was finishing grad school and unfortunately my focus had to be on writing papers…which is definitely less exciting. So much has happened, so I will get to it. 507 more words

Chronic Illness

'Conversion Disorder', 'la belle indifference'...are they (health-care providers) serious?

How many more phrases are some doctors, some psychologists and some health care providers are going to come up to label a patient’s ‘movement disorder’ that they have no idea how to treat. 1,110 more words

ADSG Quarterly Review

There was an abundance of information and events that related to Dystonia in the last 3 months. Here is what you may have missed!

February 2018… 497 more words



On Tuesdays and Thursdays Julia comes over to give me a massage. It makes me feel good and relaxed because she plays classical music while she rubs my calves . 40 more words

Cerebral Palsy


I have what is thought to be MS, and Secondary Dystonia.

Dystonia means that my muscles spasm and jerk uncontrollably, leading to odd movements and vocal pattern differences that are challenging for some people. 435 more words

Day 23.

Afternoon update:

Whoa. Well today is the day I’ve been waiting for from rehab.

The morning began with Jack’s first assessment from the head pediatric neurologist. 521 more words

Daily Updates

Wonky But Happy

“Hmmm that’ a nasty dislocation to have long term, take some morphine.”

“When you next see your neurologist, if I were you I would discuss having your botox more regularly. 499 more words