Tags » Dystonia

A Justification for Being a Less Than Ideal Patient

I don’t ask the right questions. Actually, I hardly ask any questions. Not even the obvious ones. Not even what is dystonia? How will dystonia affect my daily life? 559 more words

The Small Details

I wish I had something profound to say. I wish I could hook you with my first line and then reel you in for the rest, but truth be told I am tired. 1,172 more words

Movement Disorders

how i got through sunday's long run, 9/18/16.

There’s a lot of merit in pushing our bodies and our minds through hard things. When we cross a big finish line or finish a project we’ve been working on for what feels like forever we should be able to take a lot of pride in those things because facing those big, hard, scary things isn’t something we practice doing every day. 461 more words

The Twists and Turns of Dystonia

September is Dystonia Awareness month so it seems fitting to review  3 books about the condition. This post originally appeared on blog Books, Tea and Snuggly Socks… 766 more words


dystonia Awareness - klonopin FREE!

September is dystonia awareness month and I want to help, share and give hope to people suffering from this horrible condition. It’s been almost 2 years since I’ve written a blog about my journey with dystonia partly because of the overwhelming challenges of brain infections, 2 more DBS surgeries and the frustrations of reprogramming the electrodes in my brain.   492 more words

Dystonia, well that's just fan-dabby- doozy! 

Let me take you on a little journey to my impending diagnosis!

So this whole thing started more than a year and half ago, it started with just a bit of a stiff neck just before I went to bed. 453 more words


Dystonia Awareness Month - Muscle cramps and dystonia

Dystonia Awareness Month – Dystonia cramps my style!

“Muscle cramps and dystonia can be confusing as they can feel very similar. You may not always be able to tell the difference between them, but they are caused by separate problems and are also treated differently. 49 more words