Tags » Dystonia

The Big Picture; Goals, Plans, and Support

The past week has been a series of gains and losses, trying to get as many things in order as possible, but having to wait for others to do their part, and aside from my pulmonary function tests, it’s going nowhere fast. 1,401 more words


Handshakes are Hits and Misses

Most folks peg me as Irish or German, but they would be wrong. Those floppy, flailing, waving inflatable tube men/women at the car dealerships are my people. 1,001 more words

Cerebral Palsy

So, let's do it!

Lately, life has been composed mostly of doctor visits, Netflix in bed, herding the Monster and the Hubbilee around day in a day out, mothering, wife-ing, cleaning…There really is no end to that list and anyone who has a family understands that. 508 more words


A Few Lateral Moves, but an Ace In The Hole

Last week I saw my Pulmonologist. Although I was nervous after recent events that he would have doubts about me I was pleasantly surprised to find him just as warm as ever and I think in fact that his learning of the ER debacle only cemented our bond further. 1,619 more words


Understanding Focal Dystonia | My presentation to the Thailand Guitar Society

Earlier this week, I popped into Bangkok on my way home from Australia, to present to the Thailand Guitar Society about focal dystonia, and my approach to its resolution. 2,983 more words

What is deep brain stimulation?

Last month, I updated everyone on how 2015 went as a year for me and I told you that I’ve made a big decision with regards to treating my… 277 more words


Not what we wanted

Well, the trip to Colorado was insightful, but left us with more questions than answers. We honestly thought that the end result would be the TOS/ CRPS had returned. 466 more words