Tags » Dystonia

Joy in Pain

I usually try to hide the amount of pain I’m in on a daily basis. For me, its not worth it to dwell on the pain, but rather focus on how to feel better and take the best care of myself that I can. 907 more words

Symptoms sneak up on you

No two People with Parkinson’s (PWP) are the same. In addition to some symptom variation, the rate of progression also varies. Some people have a faster progression and some very slow. 264 more words


Going on a puffin hunt!

Finally, we managed to return to one of my favourite places -Bempton Cliffs! For years, seeing the quirky puffin in reality rather than in a book was on my wishlist so when we moved, I was delighted to discover a local RSPB reserve -Bempton Cliffs was visited yearly by these wonderful creatures. 340 more words


My Facade

After having to take a round of antibiotics for an infection, I have been experiencing a flair-up of symptoms the past couple weeks. Because the antibiotics decreases the absorption of the hormones I take to prevent seizures, I started having more symptoms than usual. 385 more words

Chronic Illness

A Rude Awakening

I can’t believe it.  I didn’t want to believe it.  There were a few signs along the way but none that confirmed my suspicion, until last night. 722 more words

Recent insights in F(H)D Resolution (January-June 2016)

As you may know if you’ve read any of the other pages in this section, I formulated my behavioural therapy approach to resolving focal dystonia in the first half of 2015. 1,735 more words


I'm Not Depressed I'm Freaken Pissed

The good news is that today, after months of waiting to see one, I was finally able to see a movement disorder specialist. As expected the moment I opened the door to my boyfriend’s dodge truck to get out and hop and step down on to the parking lot then took a step forward, my left leg began to twist in and buckle. 2,058 more words