Tags » Edward's Syndrome

To our baby

Something you should know about me, I Google everything. If it were a job, I’d be hired. If it were a sport I would be pro. 787 more words


open letter to parents

Dear parent, or parent to be,

We guess that if you are reading this it is because you have been told that your baby may have Edward’s syndrome which has been discovered either before or after their birth. 1,677 more words

Edwards Syndrome

Losing a child....again

Back in July of this year I posted that it had been a while since my last post and then things changed again. We lost a daughter Aoife at 24 weeks on May 1st then on September 12th we lost a son Lucas at 12 weeks. 399 more words


How it all started

I had a generally very easy pregnancy. I felt more sick this time, and tired, and everyone was convinced I was carrying a girl, but apart from that pretty much like my first pregnancy four years earlier. 1,568 more words

Edwards Syndrome



We live very full and abundant lives and although we enjoy great interaction within the social media milieu our core existence is very private. 445 more words

Spiritual Growth

Holding a sleeping baby

Last month something terribly sad, yet not unexpected happened. My sister in law gave birth at full term to a baby, who was born sleeping. I say not unexpected because from 12 weeks there was indication of multiple abnormalities. 433 more words


Dear Mother of Special Needs,

Grace, full Trisomy 18 & Gauge full Trisomy 21

These are my twins born April 27, 2013. Our daughter and son were both born with chromosome abnormalities. 1,079 more words