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Orphanet list Aortic Dissection as rare disease

Orphanet is a reference portal for information and documentation on rare diseases.

Aortic Dissection Awareness Day ophanet ftaad

Aortic Dissection Awareness Day ophanet patient

Aortic Dissection Awareness Day ophanet 6000… 225 more words


Spread the Word: February 28 is Rare Disease Day

Established in 2008 by National Organization for Rare Disorders’ (NORD) European partner, European Rare Disease Organization (EURORDIS), the last day of February is called the Rare Disease Day. 304 more words


EURORDIS: “Living With A Rare Disease” Photo Contest

EURORDIS announces the opening of the EURORDIS Photo Contest 2014 this week. Anyone with an interest in rare diseases can participate. The Photo Contest gives participants a chance “to communicate visually the many diverse facts of living with a rare disease.”  If one is not a photographer, one can participate by voting for one’s favorite photographs. 121 more words

Rare Diseases

Making Fruit Punch Out of Berries

World Rare Disease Day is an annual awareness initiative founded by the European organization EURORDIS and coordinated by the National Organization for Rare Disorders, Taylor’s Tale and other national and patient organizations in the U.S. 617 more words

Rare Disease Day

Eurordis: The Voice of Rare Diseases in Europe

Become a member

Join a vibrant pan-European community of dedicated people facing similar issues and strengthen the voice of people living with rare diseases in Europe and beyond. 1,039 more words

Orphan Drugs And Rare Diseases: European News (07.20.13)

Orphan Drug Designation (ODD) in the European Union (EU) is given to products that are designed for the diagnosis, prevention or treatment of rare diseases that are life-threatening or very serious. 566 more words

Orphan Drug Development

Raising awareness of children's conditions so rare, they're undiagnosed.

Tania writes:

Recently, when Debs & I went to Westminster, we met Renata Blower, a Mum who blogs about her life as the parent of a child with an undiagnosed rare disease. 1,189 more words

Special Needs