I don’t look sick. This brings about lots of assumptions about me.
Without knowing me well and just by looking at me, you wouldn’t know that I have short hair because it fell out from chemo. 364 more words
Today is Rare Disease day. Last year on this same day was the first time I shared my story on social media and I can definitely say I’ve never put myself out there like that before, but I’m so glad I did because in the rare disease and chronic illness community, we need as many voices out there. 240 more words