Tags » Feeding Tubes

counting my blessings

I am a very blessed woman. I may not be wealthy, or have some of the creature comforts that others do, but I’m blessed. I have 3 beautiful, healthy children, all 3 of which were able to leave the hospital when I left. 288 more words

Life And Something Like It

A decision to make

The last time I visited my mother, on Friday, she was in her wheelchair at the dining table sound asleep.  Nothing I did would rouse her for more than a couple of mumbled words.   684 more words


Gastropariesis: EDS Awareness Month Day #2

One of the MANY complications of Ehlers Danlos Syndrome is gastropariesis which is literally stomach paralyisis. I have this as as well as intestinal dysmotitlity. Basically my digestive system doesn’t move. 279 more words

Photo Request!

Hello Everyone!

I have a favour to ask, I am looking for photos of girls age 2-5 years old that feature them playing, laughing and just being kids, but those who have the complex care jolie hart clothing is made for. 169 more words

Children's Clothing

Grand Opening of Health Tech Innovation Foundation & Innovation Boulevard


Owner and Creative Director Taylor Byrom attended the Grand Opening for

Innovation Boulevard and Health Tech Innovation Foundation yesterday to display jolie hart!

It was an exciting day of meeting new people, making connections and sharing the jolie hart story.


Children's Clothing

Mother gagged to conceal children’s abuse in Foster Care

Mother tells daughter to fight for herself to save her from starving to death, and never sees her kids again! 

Kayla Diegel was medically kidnapped from Phoenix Children’s Hospital on April 10, 2014, two days after her sister was kidnapped by the same hospital.  938 more words

Terri Shiavo -does anyone remember ??

Today marks 10 years since   Terri Shiavo     died. Her death was slow and agonizing and painful. for those who may not know Terri was a young woman who became  unable to communicate -to move -to care for her personal needs. 624 more words