Tags » Feeding Tubes

Li found guilty of manslaughter over death of mother

Li, 22, had pleaded not guilty to murdering Emma May Tien but said she died by his hand during an incident of self-defence in their home. 204 more words


What a Beautiful Turtle!

“Coolest thing ever! A story to share with your tubie. I am a tubie and have to wear the back pack that holds my food to my tube. 332 more words

Life Of Skyla

jolie hart & The Langley Times

we are so excited!

jolie hart was featured in the Langley Times today!

You can read the full article here

<3 <3 <3

Complex Care

Wreckage find brings MH370 speculation

A large piece of curved metal washed ashore in Nakhon Si Thammarat province, where villagers reported it to the authorities to help identify it, Tanyapat Patthikongpan, head of Pak Phanang district, told Reuters. 182 more words

World News

Standing on her own two feet

It’s official, Lyra can stand on her own (with some support from an object). While this is a major milestone for any child, this is truly amazing for Lyra. 210 more words


The Third Night

I don’t know why, but I always find the third night in the hospital to be one of the hardest. ┬áMark and I trade off nights, so it’s not like I have had three nights in a row. 322 more words


Lyra is __________

I have recently noticed that I often describe Lyra by her diagnosis. When I introduce Lyra I frequently only mention her age and the negative things: she doesn’t eat, she is very small, she had a feeding tube, she has two rare genetic disorders, etc. 178 more words