Tags » Heart Defect


Reflecting on 2017 is hard for me. I have sat down to write a handful of times and find myself in a puddle on the ground when I look back at all the things that have consumed us in 2017. 1,086 more words

Down Syndrome

Israel Flies In Newborn Syrian Refugee for Life-Saving Heart Operation


 DECEMBER 23, 2017 14:36

A special medically-equipped plane brought the newborn to Israel.

Medically-equipped plane bringing a Syrian refugee newborn to Israel, December 22, 2017. 296 more words

Addy - Jacobsen Syndrome

My granddaughter Addy has Jacobsen Syndrome, a rare genetic chromosomal disorder. Without getting too clinical, chromosome 11q has a deletion, resulting in severe developmental, physical and mental  delays.  436 more words

Her Heart

Turns out I’m a terrible pregnancy blogger. I know everyone wants info and details and I love you for it and I’m grateful you are along on this journey with us. 602 more words


Trying to explain

Originally posted 8th September over on my other site.

It’s really difficult to explain to people why I’m finding things so tough and why depression has relapsed. 313 more words


Being a CHD Mummy

I’m a heart mummy but I’m not superhuman 💙

being a heart mummy can be perceived sometimes as being a bit of a super mummy. 770 more words

Walk with me

K & S-

Remember that time when Monroe was born with a heart defect? The outpouring of love and support from our family and friends was so edifying that once the dust settled after her surgery I was so inspiried to help other children with heart defects.   349 more words