Tags » HLHS

The 3forCHD Project

You guys, I am super excited about this post because I get to announce a really awesome opportunity to spread CHD Awareness.  So about 3 years ago I did something called the 32for32 project, where I did 32 acts of kindness for my 32nd birthday in order to raise CHD Awareness.   553 more words


Appreciating the Sacrifice

Lately the weather here in North Carolina has been – for lack of a better word – possessed.  One weekend it’s snowing and the van is encased in ice, and then a few days later it’s 70 degrees.   769 more words


Keeping The Innocence: Disclosing Information To Your Child About Their Own Health

How much information do you disclose to a child about their own Surgeries & Hospital Stays?
In the above photo, one of my favorite CHD sisters, Nicole and I, are at our shared Doctors Office at Johns Hopkins Children Heart Institute in St. 4,566 more words


The life of a Heart Parent is a rather insane one.  I know you know this: isn’t it amazing how the most run-of-the-mill things become colossal when your heart kid is involved?   1,040 more words


A Lot of Miles and a Lot of Trust

As you know by this point, on top of having a CHD, Nolan has also struggled with feeding issues his whole life.  Aside from slowly taking a couple bottles from me when he was a couple days old in the NICU, he’s never really eaten by mouth.   1,187 more words


Another New Year

It’s now 2017, Oscar was born in 2014. Time has to move on, I get that, but I still find it hard to believe how quickly we are approaching three years since April 2014. 897 more words

When You Realize Another Year is Gone

339 days ago we waited in a sterile checkup room. Annie innocently slammed empty cabinets and shuffled through doctor’s equipment. Matt and I complained about the wait and intermittently scrolled through newsfeeds. 402 more words

Faith & Doubt