Tags » HLHS

Top 5 Ways to Stay​ Sane in the PICU

Dear Heart Parent,

All hope is not lost! Here are some tried and true ways to maintain your sanity while your child is in the hospital: 640 more words


Fighting Fear

It’s been our 17th day in the hospital and sometimes It feels so familiar already..but there are days that I would cry and miss home so bad because for me staying here does not mean good news. 354 more words

Something Personal

Why Awareness Walks Matter

If you’re new around here, you probably have no idea who Riley Marie is.  Riley Marie is my best friend’s daughter.  She would have been just over three years old, dancing next to Callie at this year’s dance recital.  622 more words


The Day The Doctor Said "Cancer"

The Short Version:

Wednesday, March 28th, I was told I had Hairy Cell Leukemia. Cancer. I am meeting with a hematology oncologist in Lee’s Summit, Missouri next Tuesday and should undergo chemo within the next month. 2,424 more words


Last night after dinner, Izzie and her dad were sitting on the couch having an ice pop. Addie’s latest obsession is NCIS, which was playing on the TV. 868 more words


Jillian's Journey

by Brooke Buchanan

Jillian Harlow, of Marietta, was born May 10, 2017 with half a heart. Despite this, she isn’t letting it stop her.

Jillian was born with Hypoplastic Left Heart Syndrome (HLHS), which is where the left side of a heart is undeveloped. 637 more words

Community News

Confessions of a Heart Mom's Best Friend (originally posted on May 20, 2015)

I want to start out by saying that in no way, do I think I know what it’s like to have a child who fights for her life every day.  3,049 more words