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Talking Through

I don’t know if this happens to anyone else, or maybe it’s just me due to special circumstances, but there are occasional moments that bring back early memories of this heart journey.   1,140 more words

HLHS

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“If I had written the greatest book, composed the greatest symphony, painted the most beautiful painting or carved the most exquisite figure I could not have felt the more exalted creator than I did when they placed my child in my arms.” – Dorothy Day

Lil Litschewski

This One's For The Mamas

It’s Mother’s Day!  I wanted to spend a moment today and send a special shout-out to the Heart Moms out there.  You’re our partners in this heart battle, you brought our little heroes into this world.   301 more words

HLHS

Back At It

Hey friends!  For those of you who follow this blog regularly, you’ll notice it’s been a bit since I’ve posted.  I took a bit of a break and it felt nice to let life happen.   261 more words

HLHS

He's out!!!

Just spoke with Dr.Morell and he was pleased with the procedure. Everything went well and we’re waiting to go see him. All this pressure leading up to this moment is just gone and now replaced with anticipation to see my baby. 14 more words

Ladybugs

 

Just as I was settling the boys down for a lunch time nap today there was a knock at the door. A surprise delivery from Anya one of the kindest, most talented caterers in Sydney. 310 more words

Born with a Death Sentence

365 days ago my daughter started her fight for survival. Her first gasp for air was a harsh awakening that she was born into a world that her body wasn’t made for. 639 more words