Tags » HLHS

Kindergarten

Leeland on his first day of Kindergarten. Leeland Neeley 8.18.16

Enjoying the last day of summer and first day breakfast

Leeland couldn’t be more excited about being in school. 39 more words

Leeland

After looking at various websites about dealing with having a terminally ill child, I made a list of the 10 things parents of terminally ill children truly appreciate and need.

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CHD Awareness

After looking at various websites about dealing with having a terminally ill child I have come up with a list of things you shouldn’t say to parents of these amazing children.

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CHD Awareness

‚ÄčIn the months since BJ has been placed on hospice, I have spent a great deal of time thinking about what can be learned from all of this, to make meaning out of our journey with BJ and congenital heart defects.

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CHD Awareness

BJ's Courageous CHD Journey

This is the story of the bravest little boy I know and how he touches the lives of everyone he meets. BJ has a complex congenital heart defect and on July 21st, 2016 we began our journey as a family down the long road of caring for him as he was placed on hospice care. 74 more words

CHD Awareness

“Guess what we are doing Sunday?” I texted to Melissa on Wednesday afternoon. “What are we doing?” came the reply. “We’re doing a race!” I messaged back, and then waited for the response. 968 more words

HLHS

From the day he packed his bag and walked out of the door, my mother never said a negative word about my father. Not once did she bait me into conversations about what a horrible person he was or dove into sordid detail about their finances. 1,115 more words

HLHS