Tags » HLHS

The HLHS Dad Goes to Washington (Part 1)

As you may have read in a previous post, I had a very special opportunity to attend the Congenital Heart Legislative Conference in Washington DC on February 25-26.   997 more words


Ted needs your blood!

So many wonderful people have asked how they can help Ted and our family. We are so grateful for the meals some of our kind friends are making as it is so so so helpful! 117 more words

Two sleeps

“Two more sleeps til my operation, I’m scared I might die.”

Ted’s words today came at me like a very sharp kick in the guts. 256 more words

Croup Doggy Dog

I have to say, Nolan really enjoys heart month…he enjoys February so much that he decides to visit his friends at Levine Children’s Hospital with a visit to the E.R.   1,318 more words


Milestones come in all shapes

Recently Sam asked to look at pictures of himself in hospital as a baby. He asked lots of questions mainly about about the wires and tubes and why he needed them. 204 more words

At Home

Today we won!

Ted and I left home before 8 o clock this morning and we got home late in the afternoon. It was a very long day for Ted but from start to finish he was the bravest of the brave. 594 more words