Tags » HLHS

Dear Phlebotomists...

Heart parents, you know this scene: you’re in the hospital with your little one – maybe it’s post-surgery or an admission for something else.  Either way, your child has been fussy or in pain and sleep has been really hard to come by.   1,194 more words


Spring Break wrap-up

Once we finally got going last week, I think the kids had a nice Spring Break. We went to Galveston for a long weekend. Not my favorite Texas beach, but it was nice to get away. 232 more words

We did it!!!

We (and Team Miracle) made a healthy baby!! We got the all clear at our anomaly and foetal heart echo scans yesterday. It really hasn’t sunk in that I’m bringing this baby home, but it’s a relief to know i can enjoy the movement, don’t have to feel guilty when buying baby stuff and i even announced on Facebook yesterday! 542 more words

OMG I’m Pregnant!

“Its Positive, OMG” I sat in silence staring down at the double lines on the pregnancy test. The next 18 years of my life flashed through my head rapidly and all I could hear was the sound of my own heartbeat and feel the heat radiating from my cheeks. 816 more words

Time to Burst the Bubble

Friends!   March is here…and you know what that means: warmer temperatures, flowers blooming, birds singing, spring training baseball, sunshine….and the end of the dreaded flu season.   385 more words


Swell Hearts

It’s hard to believe it’s already been two weeks since the Congenital Heart Legislative Conference.  There’s still so much to write about and you’ll continue to see some posts related to the conference.   834 more words


The HLHS Dad Goes to Washington (Part 1)

As you may have read in a previous post, I had a very special opportunity to attend the Congenital Heart Legislative Conference in Washington DC on February 25-26.   997 more words