Tags » HLHS

The Door

I’m sure before you had a child that was born with a critical illness, you knew of your local Children’s Hospital, but you didn’t really know  970 more words


They Tried To Make Us Go To Rehab, and We Said...Whatever it Takes

So this was new territory for us…the Rehab unit.  While Nolan’s weakness was unexpected for us, we are always willing to do whatever it took to make him better.   607 more words


The Long Wait (the recovery process)

After a long, exhausting day of waiting for Nolan’s surgery to be done, we were ready to begin to road to recovery.  As I’m sure you know, all heart kids are different, so recovery times can vary…but we were hoping for something like 2 weeks, 3 tops.  568 more words


Super Nolan Touches Down at LCH (surgery day)

Early in the morning of June 16th, we woke up Nolan to make the 35-minute drive to Levine Children’s Hospital for his third open-heart surgery, the Fontan Procedure.  404 more words


Ellie's Story

On August 25th, 2014 our brave little heart warrior came into this world and began the biggest fight of her life. Our daughter, Ellie, was born with a rare congenital heart defect (CHD) known as HLHS, or Hypoplastic Left Heart Syndrome. 308 more words

Cyproheptadine and Twinkies: A winning combination?

For those of you wondering about Colman, he’s been doing great. We had a checkup at TCH not that long ago and everything looked the same heart-wise, which is fantastic news. 352 more words


Leeland on his first day of Kindergarten. Leeland Neeley 8.18.16

Enjoying the last day of summer and first day breakfast

Leeland couldn’t be more excited about being in school. 39 more words