Tags » HLHS



Just as I was settling the boys down for a lunch time nap today there was a knock at the door. A surprise delivery from Anya one of the kindest, most talented caterers in Sydney. 310 more words

Born with a Death Sentence

365 days ago my daughter started her fight for survival. Her first gasp for air was a harsh awakening that she was born into a world that her body wasn’t made for. 639 more words

Be Our Guest

Hey friends!  This post is to update you on some really exciting news.  I was asked by the Pediatric Congenital Heart Association to volunteer as a guest blogger!   103 more words


We Did NOT See This Coming

So let me just start off by saying thank you! Leading up to Bennet’s cath we were feeling so scared and emotional. But once the day arrived, there was a total peace that washed over us. 826 more words


April 8th...A Year On (again!)

Firstly, I’ve already written this post once and on hitting “publish” it seemed to disappear…if it should reappear later, you may get a feeling of de-ja-vu reading this one! 683 more words

A Little Heart Defect Business

Ok, I’ve been putting it off, but it’s time to talk a little business. Because, as you know 2015 is going to be a big summer. 719 more words


April 4th...One Year on/ When I was scared of my son.

Please note: From this point forwards I will be posting post surgery photos. I have posted some before, but they were carefully selected to be the less graphic ones. 780 more words