Tags » HLHS

Tiny Hearts, Enormous Defects

By : Urvinder Kaur, Alex Muller, Lauren Harnois, and Anna Kuruc

It is very important to note that congenital heart defects are among the most common birth defects affecting more than 40,000 children a year. 832 more words


Getting the Diagnosis.....

We were scheduled to go for the anatomy scan March 26,2016 and we could not contain our excitement. We have previously had three miscarriages and my desire for a child finally started to subside when I found out I was pregnant. 714 more words


Risk: More Than That Board Game You Never Played

Aside from this blog, I really enjoy sharing my story with others. Over the last couple years I’ve been able to speak to other heart parents and healthcare workers about my journey with Nolan. 845 more words


Last night a fellow heart mom posted a link to a study made by the Single Ventricle Survivorship program at Children’s Hospital of Philadelphia. The title included the word ‘relentless’ and was about the Fontan circulation which is what Izzie has. 772 more words


On a day when many people I know are standing at the starting line waiting for the race to start, I am sitting here in my pajamas sipping the last cup of coffee out of the pot. 905 more words


CHD Awareness Week: A Recap

So before you say anything, I realize I am WAY late on this post.  Better late than never, right? It occurred to me that I never posted any kind of recap on what I was up to for CHD Awareness Week, which – if you remember – was waaaay back in February.   2,370 more words


Can I Be Honest?

CHDs suck!
HLHS sucks!

I’m pretty sure everyone can agree that anything “wrong” with a child sucks! And this whole situation has really been testing me and my faith. 407 more words

Marriage And Family