Tags » HLHS

Giving My Child Life Was the Right Choice

It’s a narrative I have addressed indirectly here, and sometimes, in careful discussion, directly with others: the close tie that congenital heart defects have with abortion; the tragic reality that a large number of babies diagnosed with CHD in-utero are “terminated for medical reasons” due to their imperfect hearts. 1,591 more words

Tetralogy Of Fallot

Chronic pain caused by CHD

One thing we as heart patients become great liars, “How are you doing.” often will lie say fine or good, when if we actually told you how we were feeling, no one would talk to us.  623 more words

For years, my father, sister and I would spend weekends, school vacations and a few evenings a month together. We lived with our mom in Plymouth and he lived in Braintree. 369 more words


Sports, gym, and partition

I’ve enjoyed pushing my heart to the max.  Be it in gym, trying sports and trying hard.  I grow up with two brothers.  I played   softball in grade school.  668 more words

The Door

I’m sure before you had a child that was born with a critical illness, you knew of your local Children’s Hospital, but you didn’t really know  970 more words


They Tried To Make Us Go To Rehab, and We Said...Whatever it Takes

So this was new territory for us…the Rehab unit.  While Nolan’s weakness was unexpected for us, we are always willing to do whatever it took to make him better.   607 more words


The Long Wait (the recovery process)

After a long, exhausting day of waiting for Nolan’s surgery to be done, we were ready to begin to road to recovery.  As I’m sure you know, all heart kids are different, so recovery times can vary…but we were hoping for something like 2 weeks, 3 tops.  568 more words