Tags » Hydrocephalus

Time To Start My First Book

Since I can remember, I have wanted to write a book.  I have the stories to share, but I have never taken the time to put them down on paper.  370 more words


We're 21 months!

21 months…so close to two, I can’t believe it! It’s been a busy month and even a busy few days.

The girls haven’t been feeling great thanks to some daycare germs but have kept their appetites and willingness to play. 304 more words


HYDROCEPHALUS: On the wave of positivity

It’s easy to get dragged down into a whirlwind of despair and depression. This would be true of almost anything in life.

Hydrocephalus is not an easily digested condition and having to explain it, almost on a daily basis ever since I released my book… 643 more words


The Week that Changed my Life

Hey everyone! I know have been MIA for a little bit, but I’m hoping this article that I wrote will give you a bit more perspective!! 775 more words

A Little Something

Fall 2015

We were there!  Bill, Ashley, Mary

On Sept 26, 2015, the Hydrocephalus Association Walk in Charlotte NC was a special event for hundreds of walkers plus many children and adults with hydrocephalus and their families.  86 more words


What? How? Frustrated?

When I first saw this picture, I felt blessed to be able to see it

When I received my diagnoses from my consultant, I wanted to fly away… 370 more words


HYDROCEPHALUS: Why is it so hard to find a good Neurosurgeon?

I feel disheartened…almost helpless. Ever since I was diagnosed with Hydrocephalus in 2007, I’ve felt like I’m fighting an uphill battle. It’s not with the condition so much, which has become a part of me and that I accept. 755 more words