Tags » Hydrocephalus

Fastly approaching 32

The day I typically take as nothing but another regular day I congratulate my achievement on surviving another year on this planet. Strange right? Well after a month-long hospital stay, and surviving two major surgeries I feel tough like concrete. 143 more words

Mind Running Wild

Surrounded by eerie quiet, I struggled to make sense of all that had happened.

“Mom, are you okay?”

It was my son Brian. Thank God. Maybe he can fix this mess. 108 more words

Cowdens Syndrome for Dummies

You know it makes no sense to me how so many doctors can share differences in opinions regarding treatment. It’s seriously baffling and at times confusing how do I treat what I’ve been told is going to be a problem when nobody is saying the tests are necessary!? 185 more words

Timing is (not) Everything

In our life as we know it, everything revolves around time.  Apparently this is a social construct but don’t get me to explain or even understand exactly what that means, much as I would like to (have a look here if you are interested… … 523 more words

Spina Bifida Diagnosis

Afternoon at Bethany Kids

Yesterday, Leticia, Matthew and Karl distributed several bags of toys to the kids at Bethany Children’s Hospital.  I joined them towards the end.  Overall it was a good experience.  158 more words

Three Years of Blogging

Three years ago, I started this blog as a way to update friends and family about what was going on with Little Miss Minion. Our cell phones were blowing up with messages and phone calls, all wanting to know the latest on our little family. 102 more words