Tags » Hypoplastic Left Heart Syndrome

Let's Talk About Compassion Fatigue

Hey friends!  I hope you all enjoyed my first crack at guest-hosting Heart to Heart with Anna last week!  This week I take another shot at it.   255 more words


The HLHS Dad is BACK on the radio!

Hi everyone!  Some time last year I had the opportunity to be a guest on an online radio show called Heart to Heart with Anna: you can read all about it  255 more words


A Furry High Five

I’m always looking for fun stuff to do with the kids, especially if it’s free.  If it’s free, then it’s for me!  Mostly, though, I want my rugrats to have a good time and make memories in the process.   544 more words


20 Great Hospitals for Hypoplastic Left Heart Syndrome

A couple weeks ago our prenatal son was diagnosed with Hypoplastic Left Heart Syndrome (HLHS).   A doctor in Ho Chi Minh City told us he will need 3 operations the first few years of his life, and has about a 50% chance of surviving them. 656 more words

This is NOT the Trip I Planned For! (Part 3)

This is the 3rd and final entry in my 3-part remix of the “Welcome to Holland” essay (you can check out part 1 here and part 2  884 more words


How Long Does a Miracle Last?

I bit my nails, wrung my wrists, and chewed holes in both my cheeks while I wrapped my hungry 12-week-old tight for the 20-minute stroll. We walked slower that day, dragging each foot forward to the doom that waited ahead. 553 more words