Tags » Hypoplastic Left Heart Syndrome

How Long Does a Miracle Last?

I bit my nails, wrung my wrists, and chewed holes in both my cheeks while I wrapped my hungry 12-week-old tight for the 20-minute stroll. We walked slower that day, dragging each foot forward to the doom that waited ahead. 553 more words

This is NOT the Trip I Planned For! (Part 2)

This is the 2nd entry in my 3-part remix of the “Welcome to Holland” essay (you can check out part 1 Here).  Happy reading!

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HLHS

This is NOT the Trip I Planned For! (Part 1)

By now I’m sure a lot of you have heard of that very popular essay called “Welcome to Holland.”  If you haven’t, google it.  Basically it was written by a mom as a way to describe what it’s like to have a child with a disability/illness.   985 more words

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Is Annie Contagious?

“Is Annie contagious? Because my mom told me she’s sick…Is she gonna die soon?”

It wasn’t meant the way it sounds, but it was a sharp reminder of the curiosity that Annie is bound to face as she grows.   402 more words

A Potentially Life-Saving Reminder

Hey friends!  Today I want to keep tings really practical for everyone, whether your a Heart Dad, Heart Mom, Sibling, Friend, etc.

Way back when Nolan was prepping for discharge from the hospital after his Norwood procedure, there were a few requirements we had to meet before he could be sent home.   247 more words

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Guest Blogs for Father's Day Weekend

This is the 4th entry in my series on Fatherhood this month.  Enjoy!

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Hey everyone!  Father’s Day is almost here!  I’ve had the great fortune of having two really wonderful groups reach out to me regarding guest blogging on their sites and I’ve really enjoyed the experience so far.   199 more words

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Where my heart is today...

Today my heart is with the Syme family as they mourn the loss of their sweet daughter Evynn…

A four year survivor of hypo-plastic left heart,  and a receiver of a heart transplant that so sadly didn’t end up saving her life. 42 more words

Sick Kids