Tags » Hypoplastic Left Heart Syndrome

Huck's Heart | Questions

We’ve had a lot of questions and I thought this might be a good place to answer some of them. A lot of these are generalized for now but will be more detailed plans once we see Huck’s doctors again in March. 886 more words


The 3forCHD Project

You guys, I am super excited about this post because I get to announce a really awesome opportunity to spread CHD Awareness.  So about 3 years ago I did something called the 32for32 project, where I did 32 acts of kindness for my 32nd birthday in order to raise CHD Awareness.   553 more words


Appreciating the Sacrifice

Lately the weather here in North Carolina has been – for lack of a better word – possessed.  One weekend it’s snowing and the van is encased in ice, and then a few days later it’s 70 degrees.   769 more words



The life of a Heart Parent is a rather insane one.  I know you know this: isn’t it amazing how the most run-of-the-mill things become colossal when your heart kid is involved?   1,040 more words


#TeamKASAIYA needs your #PRAYERS and assistance!! #HLHS

 #PRAYERWARRIORS Please send up a prayer of healing!!! We’ve got work to do!!

 #TeamKasaiya GoGundMe Link

12/22/16 To date she has had three heart surgeries due to having Hypoplastic Left Heart Syndrome. 347 more words

A Reason to Celebrate

On Saturday, December 10th I woke up to a now-common sound: “Dad….DAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAD!” I hopped up out of bed and opened the door to our room to see little Mr. 271 more words


The Intersection

Every hospital has The Intersection.  Every heart parent has stood at The Intersection.  This is the place where it all becomes real, where it’s go-time, where you whisper that last fervent prayer before letting go.   728 more words