Tags » Hypoplastic Left Heart Syndrome

Caring For Your Mental Health

Hi friends: I have something really important that you all really should read – please don’t skip this post.  It’s about your mental health as a Heart Parent.   2,361 more words

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It's Right There

There are many times throughout this journey where you’re faced with situations, appointments, and dates that seem like they only exist to crush you.  The next cath, the upcoming surgery, the impending birth of your heart baby.   651 more words

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The History. Part I

So I used to be a nurse. I come from a family of nurses, Mom, Dad, Sister. So inevitably, I became one too. It was in my blood, my dad likes to say, but I loved every minute of it. 1,241 more words

Huck's Heart | Questions


We’ve had a lot of questions and I thought this might be a good place to answer some of them. A lot of these are generalized for now but will be more detailed plans once we see Huck’s doctors again in March. 886 more words

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The 3forCHD Project

You guys, I am super excited about this post because I get to announce a really awesome opportunity to spread CHD Awareness.  So about 3 years ago I did something called the 32for32 project, where I did 32 acts of kindness for my 32nd birthday in order to raise CHD Awareness.   553 more words

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Appreciating the Sacrifice

Lately the weather here in North Carolina has been – for lack of a better word – possessed.  One weekend it’s snowing and the van is encased in ice, and then a few days later it’s 70 degrees.   769 more words

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OhCrapOhCrapOhCrapOhCrap

The life of a Heart Parent is a rather insane one.  I know you know this: isn’t it amazing how the most run-of-the-mill things become colossal when your heart kid is involved?   1,040 more words

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