Tags » Hypoplastic Left Heart Syndrome

Talking Through

I don’t know if this happens to anyone else, or maybe it’s just me due to special circumstances, but there are occasional moments that bring back early memories of this heart journey.   1,140 more words

HLHS

This One's For The Mamas

It’s Mother’s Day!  I wanted to spend a moment today and send a special shout-out to the Heart Moms out there.  You’re our partners in this heart battle, you brought our little heroes into this world.   301 more words

HLHS

Back At It

Hey friends!  For those of you who follow this blog regularly, you’ll notice it’s been a bit since I’ve posted.  I took a bit of a break and it felt nice to let life happen.   261 more words

HLHS

Donation Stories: Two Boys in Need of Hearts are Best Friends

In honor of Donate Life Month this April, we’re sharing some of our favorite donation stories on the blog. This post was originally published on  341 more words

Primary Children's Hospital

Baby's thumbs-up ultrasound saves her from being aborted

Her parents were told their baby had a life-threatening heart condition. Doctors twice recommended an abortion.

But when little Chanel Murrish‘s parents saw her ultrasound, they changed their minds. 485 more words

Children

Be Our Guest

Hey friends!  This post is to update you on some really exciting news.  I was asked by the Pediatric Congenital Heart Association to volunteer as a guest blogger!   103 more words

HLHS

We Did NOT See This Coming

So let me just start off by saying thank you! Leading up to Bennet’s cath we were feeling so scared and emotional. But once the day arrived, there was a total peace that washed over us. 826 more words

Heart