Tags » Hypoplastic Left Heart Syndrome

Fighting Fear

It’s been our 17th day in the hospital and sometimes It feels so familiar already..but there are days that I would cry and miss home so bad because for me staying here does not mean good news. 354 more words

Something Personal

Why knitting with hearts?

A couple of years ago… my husband and I had our first baby, a beautiful baby girl! She was born with a complex congenital heart condition called… 123 more words

HLHS: Our Story, Pain and Hope.

Hypoplastic Left Heart Syndrome

I still don’t know much about this rare heart disease and it’s severity, and to be honest I don’t even want to know all the heartbreaking facts about it. 953 more words

Something Personal

Half-Hearted, Fully Loved (One Mother's Journey into HLHS & Loss)

Libby sat in the row of guest chairs this morning, just waiting.  She wasn’t even sure what it was that she was waiting for, but there she sat in anticipation either way.  3,717 more words


Another Glorious Year

Hey friends, I hope all is well in your world and that you’ve enjoyed your holiday season! It’s really hard to believe that 2017 is  1,054 more words


The Story of Valentina Allen: Half the Heart, but Twice the Fight

On February 15, 2013 Danielle and Ryan Allen gave birth to their second child, Valentina. However, this beautiful baby girl was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) 20 weeks into Danielle’s pregnancy, but Valentina was quite the fighter. 792 more words