Tags » Hypoplastic Left Heart Syndrome

Stages of Coping & Grief, CHD Diagnosis

I am going to give you a personal explanation of why this blog site exists. A little under two years ago I gained my new title, “ 1,903 more words


This is Real, This is Happening

We knew the Fontan was coming. We knew it was coming from day one but it seemed so far, far away. A successful Glenn Procedure gave us some room to breathe, to create memories, to move on a little bit. 640 more words


For the Heart Mommas

Hey Heart Moms!  I’m going to make this post brief, just in case you’re reading this from your phone while you’re hiding from your kids in the bathroom. 444 more words


Risk: More Than That Board Game You Never Played

Aside from this blog, I really enjoy sharing my story with others. Over the last couple years I’ve been able to speak to other heart parents and healthcare workers about my journey with Nolan. 845 more words


After living at Toronto hospital since birth, 6-month-old baby Georgia is finally home

Burlington, Ont. couple Vanessa Marshall and Gordon Lewis are celebrating that after six long months, their little baby girl is home.

Baby Georgia was born with a rare heart defect called hypoplastic left heart syndrome, which means the left ventricle in her heart cannot effectively pump blood through her body — requiring the right ventricle to do all the work. 401 more words


CHD Awareness Week: A Recap

So before you say anything, I realize I am WAY late on this post.  Better late than never, right? It occurred to me that I never posted any kind of recap on what I was up to for CHD Awareness Week, which – if you remember – was waaaay back in February.   2,370 more words


New Single Ventricle Heart Research

Figure courtesy of NASA

As the mother of a son with a single ventricle heart, I am always excited to see advancements in research for people born with “half a heart.” There is some very exciting news for those of us in the heart world who have had a Fontan Procedure. 598 more words