Tags » Hypoplastic Left Heart Syndrome

Risk: More Than That Board Game You Never Played

Aside from this blog, I really enjoy sharing my story with others. Over the last couple years I’ve been able to speak to other heart parents and healthcare workers about my journey with Nolan. 845 more words


After living at Toronto hospital since birth, 6-month-old baby Georgia is finally home

Burlington, Ont. couple Vanessa Marshall and Gordon Lewis are celebrating that after six long months, their little baby girl is home.

Baby Georgia was born with a rare heart defect called hypoplastic left heart syndrome, which means the left ventricle in her heart cannot effectively pump blood through her body — requiring the right ventricle to do all the work. 401 more words


CHD Awareness Week: A Recap

So before you say anything, I realize I am WAY late on this post.  Better late than never, right? It occurred to me that I never posted any kind of recap on what I was up to for CHD Awareness Week, which – if you remember – was waaaay back in February.   2,370 more words


New Single Ventricle Heart Research

Figure courtesy of NASA

As the mother of a son with a single ventricle heart, I am always excited to see advancements in research for people born with “half a heart.” There is some very exciting news for those of us in the heart world who have had a Fontan Procedure. 598 more words

Rare heart procedure done in the womb saves baby’s life

Samantha Davila was 27 weeks into her pregnancy when doctors discovered the left side of her unborn baby’s heart was not developing properly.  The diagnosis was hypoplastic left heart syndrome (HLHS). 298 more words


So What Do I Pack?

This is the second entry during Congenital Heart Defect Awareness Week (Feb 7-14).

I’ve heard this question asked countless times, whether in person or on social media: … 1,350 more words


Chapter 5 - RPA

Arriving at RPA, it was a crazy Monday morning and there was alot of people waiting for there appointments. Mark & I sat down in the fetal medicine unit awaiting to see Dr H. 530 more words