Tags » Hypoplastic Left Heart Syndrome

The Space Between

If you ever meet Nolan and spend more than 15 minutes with him, you’ll know that there are things that he likes, and then there are things he is  634 more words


How to be a Great Sidekick (A Father's Day Post)

Hello out there, fellow Heart Dads! As we roll into Father’s Day weekend I didn’t want to let time fly by without dropping a post specifically for all the amazing Heart Dads out there.   1,137 more words


Part 2: The Diagnosis

Just a few weeks ago my biggest concerns consisted of what my baby’s ‘going home outfit’ would be, choosing her name and deciding to have a VBAC (vaginal birth after cesarean) or not. 596 more words

Marriage, Parenthood & Social Life

Team Nolan T-Shirt Fundraiser

Hey Friends,

This post is totally a shameless plug, but I guess it would be crazy of me not to put it on here.  A few years ago we did a fundraiser where we sold Team Nolan t-shirts: they were great quality and everyone loved them. 148 more words


Caring For Your Mental Health

Hi friends: I have something really important that you all really should read – please don’t skip this post.  It’s about your mental health as a Heart Parent.   2,361 more words


It's Right There

There are many times throughout this journey where you’re faced with situations, appointments, and dates that seem like they only exist to crush you.  The next cath, the upcoming surgery, the impending birth of your heart baby.   651 more words


The History. Part I

So I used to be a nurse. I come from a family of nurses, Mom, Dad, Sister. So inevitably, I became one too. It was in my blood, my dad likes to say, but I loved every minute of it. 1,241 more words