Tags » Hypoplastic Left Heart Syndrome

The Long Wait (the recovery process)

After a long, exhausting day of waiting for Nolan’s surgery to be done, we were ready to begin to road to recovery.  As I’m sure you know, all heart kids are different, so recovery times can vary…but we were hoping for something like 2 weeks, 3 tops.  568 more words


Super Nolan Touches Down at LCH (surgery day)

Early in the morning of June 16th, we woke up Nolan to make the 35-minute drive to Levine Children’s Hospital for his third open-heart surgery, the Fontan Procedure.  404 more words


Stages of Coping & Grief, CHD Diagnosis

I am going to give you a personal explanation of why this blog site exists. A little under two years ago I gained my new title, “ 1,903 more words


This is Real, This is Happening

We knew the Fontan was coming. We knew it was coming from day one but it seemed so far, far away. A successful Glenn Procedure gave us some room to breathe, to create memories, to move on a little bit. 640 more words


For the Heart Mommas

Hey Heart Moms!  I’m going to make this post brief, just in case you’re reading this from your phone while you’re hiding from your kids in the bathroom. 444 more words


Risk: More Than That Board Game You Never Played

Aside from this blog, I really enjoy sharing my story with others. Over the last couple years I’ve been able to speak to other heart parents and healthcare workers about my journey with Nolan. 845 more words


After living at Toronto hospital since birth, 6-month-old baby Georgia is finally home

Burlington, Ont. couple Vanessa Marshall and Gordon Lewis are celebrating that after six long months, their little baby girl is home.

Baby Georgia was born with a rare heart defect called hypoplastic left heart syndrome, which means the left ventricle in her heart cannot effectively pump blood through her body — requiring the right ventricle to do all the work. 401 more words