Tags » Hypoplastic Left Heart Syndrome

The History. Part I

So I used to be a nurse. I come from a family of nurses, Mom, Dad, Sister. So inevitably, I became one too. It was in my blood, my dad likes to say, but I loved every minute of it. 1,241 more words

Huck's Heart | Questions

We’ve had a lot of questions and I thought this might be a good place to answer some of them. A lot of these are generalized for now but will be more detailed plans once we see Huck’s doctors again in March. 886 more words


The 3forCHD Project

You guys, I am super excited about this post because I get to announce a really awesome opportunity to spread CHD Awareness.  So about 3 years ago I did something called the 32for32 project, where I did 32 acts of kindness for my 32nd birthday in order to raise CHD Awareness.   553 more words


Appreciating the Sacrifice

Lately the weather here in North Carolina has been – for lack of a better word – possessed.  One weekend it’s snowing and the van is encased in ice, and then a few days later it’s 70 degrees.   769 more words



The life of a Heart Parent is a rather insane one.  I know you know this: isn’t it amazing how the most run-of-the-mill things become colossal when your heart kid is involved?   1,040 more words



 #PRAYERWARRIORS Please send up a prayer of healing!!! We’ve got work to do!!

 #TeamKasaiya GoGundMe Link

12/22/16 To date she has had three heart surgeries due to having Hypoplastic Left Heart Syndrome. 347 more words

A Reason to Celebrate

On Saturday, December 10th I woke up to a now-common sound: “Dad….DAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAD!” I hopped up out of bed and opened the door to our room to see little Mr. 271 more words