Tags » Hypoplastic Left Heart Syndrome

The Story of Valentina Allen: Half the Heart, but Twice the Fight

On February 15, 2013 Danielle and Ryan Allen gave birth to their second child, Valentina. However, this beautiful baby girl was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) 20 weeks into Danielle’s pregnancy, but Valentina was quite the fighter. 792 more words

NFL

Nya's Story Part 2

When I gave birth to my baby, time seemed to speed up and slow down all at once. Suddenly, I was transported to a place of no time, a… 641 more words

Motherhood

Hands Out of the Sand

Well November is finally here: the time of year where the temperature starts to drop a bit, the Halloween decorations get put away, and kids start to develop the all-to-familiar tickle in the backs of their throats which send us Heart Parents into a small panic.  995 more words

HLHS

The Best Kind of Handoff

Hey friends! It’s been awhile, I know…we closed out the summer having a lot of fun as a family before the fall rolled around.  This fall season, though, brings with it a very exciting time for Nolan: SCHOOL! 1,401 more words

HLHS

One Year with a Warrior

One year ago, we didn’t know if we would ever actually get to meet him.

The prognosis was grim.

We knew that *if* he survived delivery that he would have to immediately go into open heart surgery. 387 more words

Birthday

The Space Between

If you ever meet Nolan and spend more than 15 minutes with him, you’ll know that there are things that he likes, and then there are things he is  634 more words

HLHS

How to be a Great Sidekick (A Father's Day Post)

Hello out there, fellow Heart Dads! As we roll into Father’s Day weekend I didn’t want to let time fly by without dropping a post specifically for all the amazing Heart Dads out there.   1,137 more words

HLHS