Tags » Hypoplastic Left Heart Syndrome

The Intersection

Every hospital has The Intersection.  Every heart parent has stood at The Intersection.  This is the place where it all becomes real, where it’s go-time, where you whisper that last fervent prayer before letting go.   728 more words

HLHS

THE WRITER’S ALLEY INTERVIEW BLITZ—KRISTA PHILLIPS

THE WRITER’S ALLEY INTERVIEW BLITZ—KRISTA PHILLIPS

Author Interview – KRISTA PHILLIPS

“I am, first and foremost, a child of God. My relationship with Jesus defines me, and my hope is that when people see me, read my blog, or read my books, they see a glimpse of my Savior as well.” 2,420 more words

Blog Posts

The Door

I’m sure before you had a child that was born with a critical illness, you knew of your local Children’s Hospital, but you didn’t really know  970 more words

HLHS

They Tried To Make Us Go To Rehab, and We Said...Whatever it Takes

So this was new territory for us…the Rehab unit.  While Nolan’s weakness was unexpected for us, we are always willing to do whatever it took to make him better.   607 more words

HLHS

The Long Wait (the recovery process)

After a long, exhausting day of waiting for Nolan’s surgery to be done, we were ready to begin to road to recovery.  As I’m sure you know, all heart kids are different, so recovery times can vary…but we were hoping for something like 2 weeks, 3 tops.  568 more words

HLHS

Super Nolan Touches Down at LCH (surgery day)

Early in the morning of June 16th, we woke up Nolan to make the 35-minute drive to Levine Children’s Hospital for his third open-heart surgery, the Fontan Procedure.  404 more words

HLHS

Stages of Coping & Grief, CHD Diagnosis

I am going to give you a personal explanation of why this blog site exists. A little under two years ago I gained my new title, “ 1,903 more words

Anger