Tags » Hypoplastic Left Heart Syndrome

Dear Phlebotomists...

Heart parents, you know this scene: you’re in the hospital with your little one – maybe it’s post-surgery or an admission for something else.  Either way, your child has been fussy or in pain and sleep has been really hard to come by.   1,194 more words

HLHS

Time to Burst the Bubble

Friends!   March is here…and you know what that means: warmer temperatures, flowers blooming, birds singing, spring training baseball, sunshine….and the end of the dreaded flu season.   385 more words

HLHS

Swell Hearts

It’s hard to believe it’s already been two weeks since the Congenital Heart Legislative Conference.  There’s still so much to write about and you’ll continue to see some posts related to the conference.   834 more words

HLHS

The HLHS Dad Goes to Washington (Part 1)

As you may have read in a previous post, I had a very special opportunity to attend the Congenital Heart Legislative Conference in Washington DC on February 25-26.   997 more words

HLHS

Monkey business

Rowan comes in our room every morning at the crack of dawn to “snuggle.” I love it, but I just want to snuggle. I don’t want to talk, but he’s always full of burning questions. 208 more words

Croup Doggy Dog

I have to say, Nolan really enjoys heart month…he enjoys February so much that he decides to visit his friends at Levine Children’s Hospital with a visit to the E.R.   1,318 more words

HLHS