Tags » IIH

But the Doctor said...

Hello Beauties,

If no one has told you yet today, you’re doing an amazing job keep it up :)

Today’s thoughts are about Doctors and the advice they give. 1,545 more words

Mental Health

My Journey To This Blog.

First things first…
Disclaimer: you will find spelling mistakes and sentences that might not make sense, the confusion is part of my condition and a side effect from my tablets. 2,406 more words
Mental Health

Insomnia, the One Companion I Could Do Without

I know I don’t suffer in silence on this one, but I wouldn’t wish this on anyone.  I have suffered from this affliction for the better part of 25 years.  255 more words


Reading about so many fellow ICPDD patients with terrible headaches, pain, when their pressures are high.  Questions about “How can I make this stop?!”.   Short of proper diagnosis and medical intervention, relief from symptoms of high intracranial pressures may not be completely possible, but I know from personal experience that certain things help me enough to make things at least… 2,531 more words


Medication switches...

I’m SUPER not excited about the upcoming couple of weeks but I am actually a bit excited about the prospect of being on a medication that does not cause widespread chronic pain. 418 more words

A Rosetta Patient Speaks: The Cerebrovascular Theory of Intracranial Hypertension

Cerebrovasular Theory of Intracranial Hypertension, Part 2:  Leading to The Danger Zone

During my “experiential residency” in the study of Intracranial Pressure Dysregulation Disorders, it has become apparent that certain areas of the brain appear to be more susceptible to increased CSF pressure.   1,302 more words



A friend asked me yesterday how i am doing. I still do not know how to answer this question. Do i say i am good even though its a lie? 668 more words

Chronic Illness