Tags » IIH


So I started this blog a few years ago and in that time I got better and worse and better and worse.  It has been a roller coaster ride.  768 more words

What is the benefit of dural venous sinus stenting for IIH?

Dural venous sinus stenting for medically and surgically refractory idiopathic intracranial hypertension

Satti SR, Leishangthem L, Spiotta A, Chaudry MI.

Interv Neuroradiol 2017; 23:186-193.

Abstract… 308 more words


Sometimes, the warriors need someone to carry them.

Today was one of the bad ones. I can’t even begin to describe the overwhelming sense of defeat that I felt as I crawled in to my bed at 6pm and cried for 3 hours. 693 more words

Welcome to My World...

So to be completely honest, I tried this whole blog thing before…But I got so caught up in trying to spell out exactly what was happening with the specific disease that I have that it ended up more like I was trying to write a medical journal than a blog.   380 more words



What is IIH?

A severe condition with no cure that produces too much cerebrospinal fluid (CSF) causing a build-up of pressure in the brain and optic nerves. 8 more words

Idiopathic Intracranial Hypertension

Welcome To The Shunt Whisperer

Welcome to The Shunt Whisperer.  I’m a 57 years old professional forced into retirement and disability as the result of a sports injury over 10 years ago.    549 more words

Defining Your Disorder: Quality of Life by the Numbers

ICPDDs affect the lives of patients according to its unique set of symptoms, and how those symptoms apply to each patient.  Pain may be a component, but also, so may fatigue, insomnia, mood alteration, memory, cognitive function, and more.  1,571 more words