Tags » IIH

So it's #IIH Awareness month and I'm starting a post that I will add to over the month! #IIHUK  

Well, it’s been a while since I wrote because this September is a huge event in my calendar. Yes my eldest is starting school tomorrow (and no, I can’t sleep) but September is IIH UK awareness month and also Migraine awareness week from 6-12th so I’ve decided to sell spoonie jewellery with all profits to the respective charities (migraine action) for Migraine week. 278 more words

Bring on the Lumbar Puncture!

Tomorrow morning, I will be stuck in the back with a big fuck off needle, to drain the cerebral fluid from around my brain. I am shitting bricks. 48 more words

Written Post

Spiders, flies and bugs in my brain. #IIH #Intracranial hypertension treatment options 

Well, it’s 3:45am on the final morning of our trip away to Kent to stay in a barn conversion on a farm. We chose from limited pickings as a last minute booking when we knew that there was not going to be that call for us to go up to Cambridge for THE operation! 1,557 more words


If you’ve been following me long enough you would know how often I’ve been in hospital a lot lately. Well today makes 8 admissions in 8 weeks. 466 more words

Abc Diet

My Unforgiving Skull!    A poem about #chronicillness #chronicpain #IIH #migraine #Friendship gets you through the toughest of nights! 

And so I’m awake from the hurt yet again,

Two hours after the last yelp from my head;

Boomed out before my eyes closed shut, at last. 227 more words

Fucking fuck fuck FUCK

I had my Neurosurgeon appointment today. It was my first time seeing this doctor so I was a bit anxious. My normal neurologist sent me to him to get a second opinion. 272 more words

Abc Diet

School holidays

So in my last post I know I promised that I would be writing more regularly, but these school holidays, blog writing plus my birthday and lots of jewellery orders haven’t been a good mix of having time to write! 1,793 more words