Tags » IIH


My diagnosis journey. Where you realise that your whole life changes in the blink of an eye. How one day you can be thousands of miles away from home, sunning yourself at your private swimming pool at the villa on your first proper holiday abroad, listening to cheesy eighties ballads up loud on a bluetooth speaker and tipping your boyfriend off the crappy €5 lilo you got at the Spar into the water, no cares in the world, then the next day, back in Scotland driving along the M8 when you suddenly get severe head and neck pains and think nothing of it but over the next 3 weeks your whole life gets turned upside down. 1,994 more words

Chronic Illness


Today i feel like crying. I dont have a specific reason why, nothing has plucked my heartstrings or upset me. But i can feel it. The lump in my throat, like a bubble of emotions trying to escape that i keep swallowing to stop from coming out, for fear of how it will sound. 216 more words

Chronic Illness


Why did i decide to start a blog?

I was recently diagnosed with IIH (Idiopathic Intracranial Hypertension) and i have decided to start a blog to have a place to write down my feelings and hopefully help others in my situation not feel alone in their journey. 122 more words

Chronic Illness

 So for anyone who has the disease you know that keeping energy is hard. Example I was Diagnosed in July or should I say my testing started in July to see why had bad headaches. 202 more words

What is the most sensitive MRI sign of IIH?

Transverse sinus stenosis is the most sensitive MR imaging correlate of idiopathic intracranial hypertension

Morris PP, Black DF, Port J, Campeau N.

Am J Neuroradiol… 301 more words


New Doctor Date

The day finally came. The day I’ve been waiting months for. The day I have been reminding Endi, and him reminding me about since November. NOVEMBER!Two days before Endi’s birthday we set the car on autopilot to our favourite, er… not so favourite hospital for yet another doctors appointment. 816 more words

Does binge eating disorder contribute to IIH?

Impact of obesity and binge eating disorder on patients with idiopathic intracranial hypertension

Raggi A, Curone M, Bianchi Marzoli S, et al.

Cephalalgia 2017; 37:278-283. 236 more words