Tags » IIH

Head surgery!

At the moment, I’m sitting in a quiet ward, the lights are out and all the patients’¬†curtains are closed. Behind them slumber fellow patients of the University College Hospital, ¬†commonly known as Neurological and Neurosurgery Hospital in London. 649 more words

My Life

Why I Knit #1,039,475

This headache has not stopped since New Years Eve.

Okay, that’s a lie. There were about two days a month ago where my head was okay and those days were GLORIOUS. 286 more words


I don't want to play this game anymore!

There it is I’ve said it. It’s out there in the world of blog readers and friends and family. I’d like to get off now please! 1,076 more words

Note to self

*If I decide to spend some of my, now very precious money on a healing treatment, for which I know I’ve had success in the past; please go straight to bed afterwards! 1,847 more words

Why do I write about this journey I'm on?

When I started writing this blog just before Christmas, I thought it would be a cathartic experience that I would pretty much keep to myself and the few friends whom I had known had been supporting me on my journey since Jan 2014 and many since before then. 1,131 more words

My Frustration with Intracranial Hypertension

Last night I got two hours sleep. The night before I got 3 hours. I’m sure you can see where I’m going here… So just to catch anyone up who is unaware of what’s happening to me right now I’m currently battling debilitating headaches mixed with an overwhelming bout of anxiety. 1,973 more words

On my way to healing

This photo came up on my Facebook feed today and made me think back to a couple of conversations I’ve had with friends over the phone or internet about how far I’ve come on this journey and what I have learned that I can pass on to others. 2,202 more words