Tags » IIH

Between a rock and a hard place

So I have finally found a local neurologist that wants something to do with me. If you are not sure why local neurologists have rid their hands of me then please read my post: … 1,328 more words

The push and pull of parenting when you're a chronically ill mum.

I’m starting this post at the end of half term. A half term where my husband has taken every day off work so we can spend time as a family; have friends for the boys to play with here (managing to attempt to start repaying some of the help of our awesome friends who collect them weekly from school for us); relax together and go on short trips out: not day trips anymore, but maybe a trip out for coffee or to the library! 1,104 more words

Diseases and Patience!

If having an illness or life threatening disease teaches you anything, it certainly is to teach you patience. Which is quite funny as both the word “patience” and “patient” are both nouns, and “patient” means a person undergoing medical treatment. 1,276 more words

My Life

Intracranial Hypertension Ribbon Scarf

IH Ribbon Scarf 

(By changing the colors, you change the cause you support. So make lots for all your causes!)

Hook 5.5 mm


Royal Blue Red Heart Soft             ( B ) 157 more words

Free Pattern

I took a writing vacation

By accident really.

I got released from the hospital Tuesday. Not because I am doing any better, but because we were unable to find proper arrangements regarding Childcare for my son. 168 more words

The mysteries and marvels of medication

Well I am just over a year on this interesting journey and I have done a full circle of medication. This post is about the trials and tribulations along the way! 2,404 more words

Squeezing my lungs and brain!

Waiting for a bed at my CF hospital feels like forever! As i cough and cough, the pain in my chest is miniscule compared to the pain in my head. 132 more words