Tags » IIH

Remember kindness makes a difference.

I’m 3 days post lumbar puncture, still suffering slightly with a low pressure headache, but my pain, is mainly radiating from my back. I had my ‘new patient’ appointment with my new GP first thing yesterday, which went really well, the Dr was really supportive and said though she didn’t know much about IIH, she would try her best to support me medically through my journey, she said we would work together to see what works, which was really reassuring (positivity yay)she thinks a nerve may be damaged in my back temporarily due to LP, but should heal up soon, am hoping so as I feel like I’m walking like a duck!! 632 more words

Mum Life

Pain in the back - Lumbar Puncture day!

Now as you all know I’m trying to go down the positivity route, but after my experience yesterday it’s a struggle, however today is a brand new day, I have a wonderful family and friends who love and care for me, this is what keeps me going through this IIH shitty experience. 2,065 more words

Mum Life

Pseudowhat?

3 words. Idiopathic. Intracranial. Hypertension. Never heard of it? Yeah, neither had I till I got diagnosed with it back in June of 2015. 808 more words

Chronic Illness

My start of January positivity!

Today was my first hospital appointment of the year, taking on board that my new approach is to attend them with more positivity and make a more concerted effort to leave my negativity in the past. 978 more words

Mum Life

Morning Pain.

Last night my head felt a bit odd, not awful but not right, this morning I have awoken to a vice crushing my brain together whilst trying to push itself out of the front of my face, it’s not a feeling I’m unfamiliar with but it’s one I haven’t experienced for the past 6 weeks with such ferocity, I’ve had the odd light head pain as usual which you know you have but just go about your usual day, this is partially I think because I’m used to having it, I’m sure other sufferers can empathise with me on that, we all have headaches, mild or chronic, some we can manage, some we cannot. 555 more words

Mum Life

Hello 2017, An Introduction

The 2016 Office Xmas Palm Reader Prophecy has foretold that 2017 is supposed to be the year where I own it and that 2016 could be counted as a rebuild/transitional phase of sorts. 333 more words

Chaos Magick

How good is acetazolamide for idiopathic intracranial hypertension?

 Quality of life at 6 months in the Idiopathic Intracranial Hypertension Treatment Trial

Bruce BB, Digre KB, McDermott MP, Schron EB, Wall M; NORDIC Idiopathic Intracranial Hypertension Study Group… 265 more words

Neurology