Tags » IIH

Something I should have done a long time ago...

Many times over the last three years, I have wanted to send this letter to the doctors who missed my brain disease.  I’ve rewritten it too many times to count, always promising myself that I would send it when I knew it was exactly what I wanted it to say.   1,316 more words

My 2 year anniversary and my forever attempt (fail) to explain to others...I could have (~~~) successful surgeries but still never make a full recovery. #Ihaveiih

Ask anyone with Chronic illness when they are going to get better and you are going to get daggers! Whether you notice them or not is another matter. 1,779 more words

Holly Diagnosed with IIH (Idiopathic Intracranial Hypertension)

My 11 year old daughter started secondary school in September 2015. She loved school up until this point and I thought she would flourish at her new school. 1,244 more words

#Morphine and #Christmas. What a combination! 

So the last time I wrote a proper update I was telling you that I was giving in to the oramorph and having to accept that I needed to take it at regular times again. 1,139 more words

Wisdom a #poem about #chronicpain and #wisdom

“The quality of having experience, knowledge, and good judgement; the quality of being wise.”

Clary Sage burning, to ward off the ache,

Inadvertently bringing clarity. 195 more words

#painsomnia and the cycle of #pain and #negativity

I’ve not been writing a blog at the moment because I’ve run out of laughs……

‘I just want the pain to end’!

Painsomnia is eating away at my core of positivity. 762 more words

words fail and fade, but...

Every day I struggle to find words. The worst is when I’m standing in front of one of my congregations on Sunday morning and I’m trying to pray extemporaneously or preach a sermon from the heart rather than from manuscripts, neither of which I should do anymore. 857 more words