Tags » Inherited Disorders

Epidermolysis Bullosa Week - October 25 - October 31

The week of October 25 through October 31 each year is designated as epidermolysis bullosa week. This is a skin disorder that I will explain below as that disease is so near and dear to my heart because this is the skin disorder I was born with. 395 more words

REPOST: Many Children With Duchenne Muscular Dystrophy Could Benefit From Genetic Editing

 A new approach to change the existing mutated gene responsible for the Duchenne “muscular dystrophy” disorder has been discovered by the Duke University scientists. This… 575 more words

Ideas for speakers.....

We’ve had a few ideas regarding future speakers and these include:-

Pharmacist to discuss warfarin therapy and / or similar.


Medotronics rep to discuss advances with the ICD technology… 50 more words

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