Tags » Invisible Disease

Day 138

Vascular Ehlers Danlos Syndrome (n): an invisible, chronic, progressive genetic disorder characterized by numerous symptoms and expressed differently in each person.

Want to know more? Check this out: … 18 more words

A Year Of Niftiness

27 More Days Until WALK MS 2017!

I recently had the honor of meeting with Colleen Kalt, President and CEO of the National Multiple Sclerosis Society-Wisconsin Chapter, so that she could hand deliver my Big Cheese shirt (Big Cheese=the top 100 fundraisers in the state–something you’ve helped me accomplish each of the three years I’ve done WALK MS so far) this year and hear my story! 316 more words


MS and the Spinal Cord

I recently read an article on everydayhealth.com called “When MS Attacks  the Spinal Cord.” I was told when I was first diagnosed, four years ago, that I had four lesions in the cervical area of my spinal cord. 393 more words

Multiple Sclerosis

Through the Eyes of a Caregiver

To wrap up Multiple Sclerosis Awareness Month, I thought I’d do something a little different and hand the floor off to someone who is very  992 more words


Hindsight: When It's Not Always 20/20

What did I do wrong? What could I have done differently? How could this happen?

What did I miss?

We ask these questions in the wake of local or national tragedy. 1,084 more words


My Story (Part 1)

Now it’s time to talk about me, good, something I excel in.

This time last year I noticed I was struggling to go for a run, I was out of breath more and wasn’t able to hit my target points which was odd but I brushed it off as I was coming down with something. 1,314 more words

Bowel Disease

What is IBD?

I figured this should be my next post before I get into what happened to me last year.

IBD is Inflammatory Bowel Disease but it can be broken down into different groups; Crohn’s Disease & Colitis being the main two. 1,288 more words

Bowel Disease