Tags » Jia

April Showers

April hasn’t been our month, and that is saying it nicely.  Honestly, April has been our worst month yet on this journey.

We started out with a recheck appointment with the eye doctor to see if the inflammation in Sophie’s right eye had finally resolved.   1,251 more words

JA Journey

Warrior Mama, Warrior Child

It was 5 years ago this month that I received the amazing news that I was pregnant with my little miracle.  My heart was filled with so much joy, amazement and fear.   786 more words

JA Journey

Empathetically Yours

Recently, my daughter fell off of a cliff. Not literally, but metaphorically. She got very sick, very quickly, and we didn’t know why and we didn’t know how to help her. 1,158 more words
Life Lessons

When I was still a normal person

A friend with whom I mostly communicate via social media recently started taking methotrexate for her psoriatic arthritis. She was scared. She worried about losing her hair. 688 more words


So, I blog now.

When I decided to start a blog, I hesitated until I found the perfect name. I knew my subject because it is a constant presence and has been for about half of my life. 236 more words


Wonderful news and a disastrous cake

I haven’t been able to stop smiling for the last two days On Wednesday, we went for Dink’s first review since her diagnosis, scared and really hoping for a little bit of positive news somewhere. 212 more words


Diagnosis: JIA and Uveitis. State: heartbroken.

As I’m likely to write about it rather a lot, I thought I ought to get the back-story out of the way now and write about my daughter’s recent diagnosis. 2,446 more words