Tags » Living With Chronic Illness


September arrived so quickly this year.  Perhaps I say that every year?

I was looking through pictures on my phone and realized that it was two years ago this month that my bad intrathecal baclofen pump was finally removed.  501 more words

Moving Forward

A Falling Out

I would entertain confidence,
but here, on the edge of emotion
(others before self )
I am ungrounded.

I gesture kindness
(a shady, alluring reconciliation) 68 more words


Taking Off the Super-Parent Cape With Fibromyalgia

How to be a great parent while managing fibromyalgia and not over-extending yourself.

You might know Supermom. You might even be her. I am—well, I was Supermom until chronic illness forced me to take off my invisible cape. 108 more words

Living With Chronic Illness


Remember when we were lovers,
and  would stay all out night –
me full of bravado,
you coaxing one more drink?

I’d awaken the next morning… 231 more words


Emotional Pain Dance

A singular activity
suffices not to distract
from underlying pain –

Robotic attentiveness
fails to allay
constant buzzing –

Sidestepping issues
elicits no solace, 41 more words


Weekly roundup

I’ve had two comments left on my blog this week telling me how to cure myself.  One is to have coffee enemas and the other is to avoid high oxylate foods like almonds and spinach, all packaged foods and wheat.  774 more words

Mast Cell Activation Disorder

If I Died Tomorrow...

If I died tomorrow, I would have lived a wonderful, full, exciting life.

I’ve been so blessed- I’ve done EVERYTHING I’ve ever wanted to do, everything I’ve ever dreamed of! 367 more words

Parenting Baby After 40