Tags » Living With Chronic Illness

Weekly roundup

Better late than never :-)

This week has been sunny, warm (not hot) and dry………..and I’ve felt brilliant!  Loads of energy and motivation and my pain levels have been good.  634 more words

Mast Cell Activation Disorder

Misery loves company

I’m sure some of you reading my posts about my Mum must find my attitude towards her a bit harsh.  I get that.  You’re reading snippets of my worst thoughts and feelings about the situation and I’m sure I appear pretty hard-hearted.  1,058 more words



Memory is a weird thing. This morning I found myself singing a song that I learnt in Year 4 of Primary School (so aged 9?). I knew all of the words and the tune. 916 more words


Dysautonomia: a big, scary word?

When one Mum’s body started doing strange things, her daughter knew what it meant…her Mum was dying.

Only, the Mum wasn’t dying. 
Her body just does strange things because she has dysautonomia. 223 more words

Chronic Illness

Where's the Hashtag?

I don’t ‘fit’ anywhere. I have Secondary Adrenal Insufficiency. I don’t have Addison’s Disease, so don’t fit into those or other autoimmune organisations. And I don’t have a Pituitary cause of Secondary Adrenal Insufficiency (that I know of), so I don’t come under those charities. 733 more words


What I Mean When I Say "Migraine" + Dealing At Work

“Oh, I get headaches, too! I’ve got an IBUProfen, do you want one?”

The first thing I learned after being diagnosed with a chronic illness is that it is incredibly difficult for people to understand. 1,379 more words


Weekly roundup

Gosh, where do I start?  This week has been a bit nuts but I achieved a lot so I guess it was worth it.

Monday my Dad had his first appointment with the Psychologist who is doing some more in-depth testing for his dementia.  833 more words

Mast Cell Activation Disorder