Tags » Locked In Syndrome

Reckless Parenting?

Sometimes people judge, and label parents as reckless. As parents, we make decisions that are thought out – we choose not to wrap out kids in cotton wool. 690 more words


When stroke recovery doesn't happen.

I’ve long been associated with the notion that stroke recovery is always possible, whether those improvements are small or large positive changes.

However, I have to admit that since meeting Kati Van De Hoeven in beautiful Finland last weekend, I’ve met someone who sadly hasn’t made very much physical improvement in twenty years, after her brainstem stroke and locked in syndrome diagnosis. 1,115 more words

Sleepyhead by Mark Billingham- What a great book to review!

Sleepyhead by Mark Billingham
My rating: 5 of 5 stars

Amazon offered this novel as one of a selection of free books. I knew nothing about the author and chose Sleepyhead just because it seemed the best one on offer. 160 more words


John Scalzi's Lock In Takes the 'Artificial' out of AI

Martin Pistorius was locked in his frozen body for twelve years, unable to communicate with the family caring for him day and night. After a severe illness in his youth, he lost the ability to move, and doctors assumed he was in some sort of vegetative state. 578 more words

Book Reviews

Locked in syndrome

I saw a national news report last week about Martin Pistorius. At age 12 he came home sick from school and quickly grew worse, lapsing into a coma that lasted for some 3 years. 733 more words

Joy Comes in the Morning

I’m in two minds about posting this. I feel like it doesn’t really have a point. But, it’s all part of my journey so decided to include it. 844 more words