Tags » Locked In Syndrome

Inside the Mind (and Heart) of a Ghost Boy

Subtitle: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body

Although I’m arriving late for the book review party, I was especially drawn to… 597 more words


Chapter One

If I’d known I was about to die, I would have leaned out further. We were on top of the Wrights Hill water tower, pitching out on a 45 degree angle into the relentless southerly. 4,092 more words

Reckless Parenting?

Sometimes people judge, and label parents as reckless. As parents, we make decisions that are thought out – we choose not to wrap out kids in cotton wool. 690 more words


When stroke recovery doesn't happen.

I’ve long been associated with the notion that stroke recovery is always possible, whether those improvements are small or large positive changes.

However, I have to admit that since meeting Kati Van De Hoeven in beautiful Finland last weekend, I’ve met someone who sadly hasn’t made very much physical improvement in twenty years, after her brainstem stroke and locked in syndrome diagnosis. 1,115 more words

Sleepyhead by Mark Billingham- What a great book to review!

Sleepyhead by Mark Billingham
My rating: 5 of 5 stars

Amazon offered this novel as one of a selection of free books. I knew nothing about the author and chose Sleepyhead just because it seemed the best one on offer. 160 more words


John Scalzi's Lock In Takes the 'Artificial' out of AI

Martin Pistorius was locked in his frozen body for twelve years, unable to communicate with the family caring for him day and night. After a severe illness in his youth, he lost the ability to move, and doctors assumed he was in some sort of vegetative state. 578 more words

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