Tags » Long Term Illness

Accessible loos for invisible disabilities – They’re coming to a supermarket near you #AccessibleLoos4InvisibleDisabilities

Today I had planned to publish a post on how to respond to people’s questions about your recovery, which would have been the last in a blog series on recovery. 1,297 more words

Long-term Conditions

It's Aloha, not Goodbye

While Britt was in the throes of dying, 363 days ago, I promised myself I would write a book to celebrate his memory and share the lessons of 31 years living with ALS. 1,006 more words

Guilt in Chronic Illness

       Nothing is more wretched than the mind of a man conscious of guilt. – Titus Maccius Plautus, early Latin playwright

 I recently read a post written by a chronically ill lady* whose life is shadowed by the pernicious presence of guilt. 776 more words

How I learned the truth about Chronic Lyme Disease

In September 2014, I came down with a flu-like illness. I had a high fever, body aches, extreme fatigue, and a relentless, pounding headache. With no improvement after two weeks my doctor started running tests, one of which was for Lyme Disease. 1,470 more words

Renee A. Schuls-Jacobson, Professional Artist

moving the podcast – interview from December 16, 2014


Episode 34. Renée A. Schuls-Jacobson was a teacher for 20 years and will always be a writer, but this year she also began sharing her paintings with the world. 140 more words


Our Children, Our Choices

When my son Thomas told me last year he wasn’t coming home for Christmas, it dawned on me that my life had really turned a corner. 845 more words

On a drive to work with Britt

Hawaii is a very special place. It is our home and our people.  What makes Hawaii special everyday is the beauty of the place. A drive to work is never dull. 53 more words