Tags » Long Term Illness

"hope is never lost"

I know it’s all you’ve got to just, be strong
And it’s a fight just to keep it together, together
I know you think, that you are too far gone…

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Absence, Loss, and (Another) New Beginning

In the months that have passed since my IV antibiotic treatment ended and my PICC was line was removed, I thought many times of coming back to this space, to share how life is off treatment, and the changes I made in my life to adjust to my new-new-newest “normal.” But it’s been hard to put together neat little stories that can be nicely presented here, because this has been a very emotionally challenging time. 558 more words

Paralysed Voting

How do you vote if you can’t get out of bed? In this video I talk about some of the options available, specifically proxy voting that I made use of when I was paralysed in ICU with Guillain-Barre Syndrome in 2010. 45 more words

Guillain Barre Syndrome

Review of "Kisses From a Good God: A Journey Through Cancer" by Paul Manwaring,

A review of Kisses from God

I do not read many Christian books, always thought they would be boring and irrelevant, however this Lent I have read a couple and this is one of them. 397 more words

My Thoughts

Calling all crafters!

Yes, on Instagram I saw this request to fill in a questionnaire about the potential therapeutic benefits of knitting, crochet and craft activities. This is a subject close to my heart so I promised to share. 41 more words

Inspiration And Reflections

Still here

At the end of January one of my doctors gave me a referral for a new Lyme doctor. I have been having more downs than ups with my health for a while now, and my Lyme doc is kind of out of ideas for me. 207 more words