Tags » Motor Neurone Disease

'One More Song' by Nicki Edwards (My Review)

About the Book 

Can a city boy and a country girl find a way to be together?

Harrison Baxter and Edwina Campbell lead completely different lives. 818 more words

Book Reviews

As promised...

So I promised I’d share one of the stories (very short stories) from my memoir course. I have an idea that in time I’ll write a series of short stories covering the many different events in my life to date and put them all together into one book. 1,327 more words


Heartache and tears

It has been an emotional time over the last seven months, there has been both laughter and many, many tears from both of us.

Angela has been very emotional over the last few days and has at times reduced me to tears with such morbid talk of the end of her life. 242 more words


Lady and the Power Wheelchair

It is nearly Christmas and this year has just flown by, since Angela’s diagnosis of MND it has been like one long day, the days just seemed to turn into weeks. 521 more words


The Swansong Project

“In a song there is a soul that is eternal.”

Ben Buddy Slack watched his grandmother Teresa (my aunt) deteriorate due to Alzheimer’s.

“Towards the end me and my uncle sang her favourite songs to her. 372 more words

Self Healing

Does marriage improve survival in people with MND?

Marital status is a prognostic factor in amyotrophic lateral sclerosis

Spataro R, Volanti P, Lo Coco D, La Bella V.

Acta Neurol Scand 2017; doi: 10.1111/ane.12771 (Epub ahead of print). 249 more words


MNDA Parliamentary Reception 2017

I promised a blog post looking more broadly as the MNDA’s parliamentary reception last week. After writing about our personal experience, it felt important to talk about why we were actually there, and what we set out to achieve. 767 more words