Tags » Motor Neurone Disease

Because I cannot call you

On my kitchen table sit this bunch of flowers. They may seem ordinary to you, pretty but nothing special, that’s because you are not me. Freesia have a special meaning to me and will forever be ‘our’ flowers, mine and my dads. 137 more words


Running my first 20km, and the pug that nearly stopped me

So today I ran the furthest I have run ever – 20 kilometres.

I did it in one hour and 26 minutes. A few months ago, it took me an hour to run 10 kilometres. 1,200 more words


Monday Morning Motivation - Blazeman

Jon Blais was born in Massachusetts, but moved to San Diego because of its sporting reputation. He worked there with students with disabilities. At the age of 33 he was diagnosed with motor neurone disease, and was permitted to enter the 2005 Ironman Championships in Kona, Hawaii, which was a lifelong dream. 125 more words


Sucked into a Vortex

As you sit in the chair and wait for the results your nervous, your life as you know it may change forever,  you want to know, but you don’t. 201 more words

Pitstop 1 : Isle of Skye

Molly’s Version:

On a calm and, what would seem, simple Sunday morning we woke up on our friends’ sofa in Dundee clogged up with foreign pollen and the wibble wobbles from Saturday night. 206 more words

Mongol Rally

Eamonn's story - the 555 Neurology Project

On Wednesday 08 June, Healthwatch Essex and MS-UK hosted the launch event for the 555 Neurology Project report.

Eamonn, a focus group attendee who lives with motor neurone disease, wanted to share his story but was on holiday when the event happened! 77 more words