Tags » Motor Neurone Disease

MND Global Awareness Day 2017

When MND impacts you every day, it is easy to forget that some people are unaware of what it is. It’s easy to fall into the trap that Stephen Hawking and Ronnie Corbett and… 735 more words


MND Awareness Month - 2017

It’s just over 8 years since my Dad got the official diagnosis of Motor Neurone Disease, which means that we’re now in the territory of having lived for longer without Dad than he lived with that diagnosis – that feels pretty frightening. 707 more words

Motor Neurone Disease

Full Disclosure

Talking about MND can be quite difficult, but it is necessary for so many reasons. Firstly, it is good for your own sake to talk about the problems and difficulties you and your family face – you should never keep things bottled up. 701 more words


What is the benefit of meditation training in MND?

Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial.

Pagnini F, Marconi A, Tagliaferri A, et al.

Eur J Neurol 2017; 24:578-586. 261 more words


When Laughter Isn't the Best Medicine

One of the first questions we asked when Mum was put on riluzole was ‘will the other medication be affected’. The nurses said no, so we were grateful. 377 more words


Scone With The Wind!

Today was my last day at the company I have been working for over the last six months. As I have mentioned in other posts… 614 more words


Home and Work Collide

I have a new job, which is very exciting news. Mum is so pleased for me. It has always been so important to her to see my sister and I in jobs we love doing; she didn’t have that experience until a few years ago, when she started working as a learning support assistant for students with learning difficulties – a job she will sadly never be able to return to. 634 more words