Tags » Mowat Wilson Syndrome

A lesson from an evening with Bo Burnham

Hi, there! Hope your week is off to a great start! I am hoping that as Spring comes rolling in the Monday blues become less blues-y and more energized. 490 more words

Being A Sib

A new diagnosis possibility

Ladies and gentlemen, we have a situation.

We might have a diagnosis.

And it is exciting.

But the key word is might.

And it wouldn’t change a thing. 986 more words


It's the Great Disappointment, Charlie Brown.

Yesterday was Halloween, a day when kiddos jump out of bed ecstatic to put their costumes on and go to school for games and fun. They come home ready to brave the cold to go door to door collecting candy from strangers… 450 more words

Hard Times Ahead

As I sit here trying to pick a topic to focus on for a post, all I can think about is the implications of the election this week. 940 more words

Special Needs

Adventures in Airport Security

This summer on our travels, we had the opportunity to see TSA in action a couple of times. The first time through, going and coming back, went so well we couldn’t believe it. 888 more words

Special Needs

Ahhh, Travel

We recently have traveled with Parker and it is always interesting. I was going to say difficult, but, it sounds like I am complaining about him and I am not. 632 more words

Special Needs

Leaving It In God's Hands

We had Parker’s video EEG a few weeks ago and I didn’t know what I wanted the results to show. On the one hand, I hoped the EEG would reveal that Parker was having his continuous night seizures so that he would get the treatment and hopefully start speech rolling again. 609 more words

Special Needs