Tags » Muscular Dystrophy Association

K-HITS Cares! The Muscular Dystrophy Association's ALS Research Initiative

Press Release:

The Muscular Dystrophy Association, along with the Madden Family and the 2015 A Toast to Life Planning Committee, requests the pleasure of your company at the… 96 more words

K-HITS Cares

A Fight to the Finish

Today, a young man named Jacob passed away from complications due to Duchenne Muscular Dystrophy.  I have been connecting with his mother, Apryl, on Facebook for the last few months.   456 more words

Grief

Former National Muscular Dystrophy Association Goodwill Ambassador Mike Neufeldt has passed away

MILWAUKEE (WITI) — Some sad news about a man many FOX6 viewers got to know: former National Muscular Dystrophy Association Goodwill Ambassador Mike Neufeldt has passed away. 254 more words

Sports

Help - I've been locked up! - MDA Lockup 2015

It’s true – I’m in the clink.  Well, I will be on March 19th.

You see, I’m participating in the Muscular Dystrophy Association’s (MDA) Lockup this year.   101 more words

General

Unique art displayed downtown


YOUNGSTOWN, Ohio (WKBN) — A rather unique piece of art was on display in downtown Youngstown.

It was an “Ice Bar,” and it was put together for a good cause. 83 more words

News

A symbol that CHANGED my life forever

A few years ago I didn’t actually realized until now but I used to not accept myself the way I was born. I thought that having Duchenne Muscular Dystrophy was always going to be an obstacle in my life no matter how hard I try. 962 more words

Why do I do this?

I had a patient meeting yesterday in Knoxville, Tennessee. It should have been a a fairly easy journey – famous last words. They loaded about 10 of us on the plane and the Captain makes the following announcement: “Well folks, I don’t have good news. 466 more words

Pompe Disease