Tags » Mystery Illness

Well that's new

Had a really weird experience while sleeping last night.

It was like my whole body “fell asleep” in the same way your leg or arm does when it has been a weird position for too long. 203 more words

Redefining Normal after the Unexpected Part 3

Two days into our hospital stay Alicia was moved to the PICU. Her NIFs (negative inspiratory force) were decreasing. She became pale and was having trouble breathing. 853 more words


Redefining Normal after the Unexpected Part 2

Upon admission my daughter had no less than 15 doctors, nurses, and residents milling around her asking questions and doing exams. There was definitely a sense of urgency in the room. 571 more words


Salsa Promised Land

Have I ever shared with you that I have a mystery disease? I saw that. One sentence in and you’re already rolling your eyes. Our middle daughter Amanda has inherited this fascinating unidentified illness as well. 589 more words


Transportation and Other Medical Complications

I haven’t been posting lately because my health has taken a turn for the worse.

The mystery illness, which used to manifest every few months and last for a couple of weeks or so, has now decided (I guess) to stick around.   1,330 more words

Social Issues

Four Month Update

It’s been a while since I have updated all my wonderful friends. I have been laying pretty low these last few months. When we found out that the symptoms from my mystery health challenges came from dental work gone bad, I figured if I had the work corrected then everything would be fine. 735 more words

Winter Hasn't Been Nice

So my previous Doctor finally prescribed me a months worth of oxy. This happened because my mother actually called and demanded to speak to a supervisor (like a boss), and worked some magic to get the nurse to call me. 508 more words

Chronic Pain