Tags » Neurofibromatosis

Sometimes a simple yes or no is enough

My son doesn’t speak. But ever single day I speak to him. And I hope.
I tell him what we are doing, where we are going and who we will meet. 760 more words

Covering The Basics Of A Meningioma

A meningioma is a tumor of the meninges (covering that surrounds brain and spinal cord). Up to 90% of meningiomas develop slowly and are benign. Furthermore, most people develop a single meningioma although it is possible for multiple tumors to develop at different locations. 322 more words


The effect on me...

Having children affects everyone. You become less focussed on yourself and more focussed on another. You sleep less, go out a lot less and consider it a great achievement to get a shower without interruption. 829 more words

Walking on bubble wrap or walking on egg shells?

Have you ever worked or lived somewhere were the mood of just one person affects everyone else? The boss is having a bad day so the atmosphere in the office is awful? 726 more words

Clinical analysis of spinal stereotactic radiosurgery in the treatment of neurogenic tumors


In this study the authors sought to evaluate clinical outcomes after using stereotactic radiosurgery (SRS) to treat benign and malignant spinal neurogenic tumors. 270 more words


This is my 'normal'

This is my ‘normal’

The intense sadness is beginning to ease now. Waves of heaviness still creep up on me at times but I cry, wipes my tears away and face another day with a smile. 586 more words

Neurofibromatosis Awareness

This fall I am participating in the annual NF Event in Los Angeles to raise awareness for this condition.  Neurofibromatosis is a genetic neurological disorder that affects the brain, nerves, skin and spinal cord. 50 more words