Tags » Neurofibromatosis

You are condemned to silence, to suffering, and to death.

Elected politicians who associate themselves with conservatism and the Tea Party/Republican Party continue to show that they are determined to condemn sick people to a life of absolute silence, of cruel suffering, and of swift death. 405 more words

Thoughts And Perspectives

No control over your physical appearance

Nowadays when it comes to finding a potential partner the main factor that will help you attract someone is down to your physical appearance. You have little control on your appearance and everyone find different things attractive. 506 more words


Tumors, Nerves, and Surprises of Surgery

It was Wednesday, March 11, 2009. To my shock and horror, I gradually realized that I was effectively paralyzed from my legs down. With vivid memories of… 338 more words

Thoughts And Perspectives

Changing My Dating Theology

Is it just me, or do any other you other single ladies on the planet feel like God hates you because you’re single? That something is wrong with you because you are single? 3,969 more words


Screaming But Nobody Can Hear Me

It was Wednesday, September 6, 2000, sometime late in the morning. I was in the intensive care unit following major surgery (surgery #2 of 5 for Neurofibromatosis, as of June 2017) and screaming for help. 569 more words

Thoughts And Perspectives

Multidisciplinary Specialty Care Imperative for Neurofibromatosis Management

Penn State Health Milton S. Hershey Medical Center specialists are working together to form a center for the comprehensive, multidisciplinary management of patients with neurofibromatosis (NF). 664 more words

Patient Care

Brain Fog, Pain, and Surgery

Just over one week ago I had surgery #5 at U.T. M.D. Anderson Cancer Center to remove two painful Neurofibromatosis tumors on my left hand. Unlike my first three surgeries, the two most recent ones have been comparatively minor. 329 more words

Thoughts And Perspectives