Tags » Neurofibromatosis

Quick Updates

I have never been this long without posting a blog since first starting this blog! I miss it greatly. I have six blog articles in development, so expect more soon.  247 more words

Thoughts And Perspectives

Strip Down & Hit The Streets For A Good Cause

DENVER (CBS4)– There’s still time to sign up to strip down and hit the streets to help fight a disease that affects children.

Cupid’s Undie Run is scheduled for Feb. 191 more words

News

Undies-Wearing Runners Raise More Than $140K For Medical Research

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NORTH SHORE (KDKA) — Crowds of people clad only in their underwear could be seen running through North Shore streets Saturday to raise money for a good cause. 202 more words

News

Hundreds Strip Down To Raise Money At 4th Annual Cupid's Undie Run

PHILADELPHIA (CBS) —¬†Several hundred people got into the Valentine’s Day spirit by stripping down to their underwear and running around the block, but they did it for a good cause. 181 more words

News

What Gives Me Life

For those of you who know me and have followed my journey for awhile know my personal struggle with the genetic disease called Neurofibromatosis. To those new to my journey, it is apparent when looking at a photo of me that something is different. 357 more words

Peace Corps

Bare

This cannot be me
This image I see,
Tormented, distorted
Twisted disproportionated,
I do not recognise this being
This non human I am seeing,
The movements I’m shaking… 70 more words

Photography

UPDATE

I’ve been AWFUL with keeping up with blogs. It’s so sad too because this is such a wonderful outlet for me. It’s also so wonderful looking back at the wonderful and not so wonderful events that took place since finding out I was pregnant with my sweet little boy. 163 more words