Tags » Neurofibromatosis

Special birthday treat for 3-year-old on ventilation

KOLKATA: It was a surprise birthday party for little Saheli Tiwari, who turned three on Thursday. Only the ones who threw the party were an uncommon lot. 358 more words

AMRI Hospital Kolkata

Treating a Bent Back in NF

My 82-year-old, mother has softened over the years.  She will allow a friendly rooster to keep her company, doesn’t lecture me about life much, and her back is curving in as her muscles and bones become weaker.  734 more words

NF

Getting To Know Me

Hello Lovelies and Welcome to my first blog post!

Let me start by introducing myself, my name is Abbie and I am 20 years old, currently living in Essex. 329 more words

Blog

My Boss My Friend

It seems like just the other day that I came to your office and interviewed for a “caller” position. The truth is that nearly 8 years have passed since then. 1,075 more words

Battle Scars

With just two days left in Neurofibromatosis Awareness Month, I wanted to share a little more personally.  Somehow seeing is understanding and believing.  Seeing makes things more real, more urgent. 509 more words

Schwannomatosis

NF2 Awareness Day

May 22nd is NF2 Awareness Day.

Normally I don’t discuss deep and serious topics on my blog but this is one that is very close to my heart and awareness equals knowledge and (hopefully) treatments.  298 more words

Parenting

Dear Female 

Better to be alone than devalued. There’s beauty in soliloquies too. Sometimes your optic nerve will trick you into thinking you’re falling into the soft cotton of him, only to discover it was wool…

Source: Dear Female 

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