Tags » Neurofibromatosis

Physical Features.....the stares

My physical features maybe hard for you to look at. If I am honest with myself it is hard to look at myself and see the tumors in my face, legs and neck.  408 more words

Neurofibromatosis

Running Scared....Into My Father Arms

I have been running from my appointments lately. I am not scared, but I am tired. There is so many appointments and concerns. I have to first go get my results from my biopsy. 329 more words

Neurofibromatosis

Trying to Accept my NF

When I was younger, my Neurofibromatosis did not affect me like it does now. But, I do wonder if I had pain and challenges but ignored, what my body was saying. 364 more words

Neurofibromatosis

Thriving and Living...Unexpected Set Backs

My journey has came to a stop only for a little while. Within six months three people have died in my family. The last appointment I went to was ENT and she wants me to go to a pain clinic and The Cancer Center for a Biopsy. 297 more words

Neurofibromatosis

Stop Making Fun of Me it HURTS

It hurts when the people in your life talk about your physical appearance. In one breath they are being your friend but in that same breath, they are making fun of you. 547 more words

Neurofibromatosis

Season of Rest... from NF

There comes a time where we all need to rest. We need to get away or take something off our plate in order for exhale for a minute. 441 more words

Neurofibromatosis

NO medication plus SEVERE PAIN.......but JEHOVAH RAPHA

I wonder how many of us know what it is to really trust in Jesus through our deepest pain. I went through a week of no medication for my Neurofibromatosis type 1 pain. 722 more words

Neurofibromatosis