Tags » Neurofibromatosis

Dreaming of Bionic Spines

I got punched in the gut.

Everyone knows what it feels like to be metaphorically gut punched on some level. While the “punch” can come from a multitude of sources, the end result is pain. 621 more words


Sit Down, Deep Breath, Chin Up

Oncologist yesterday: just going to get to the point…according to Rory’s MRI results, Rory’s tumor has shifted and is fully covering her optic chiasm (where her optic nerves come together) instead of being off to the left side of her brain where it previously was. 685 more words


Quick Updates

I have never been this long without posting a blog since first starting this blog! I miss it greatly. I have six blog articles in development, so expect more soon.  247 more words

Thoughts And Perspectives

Strip Down & Hit The Streets For A Good Cause

DENVER (CBS4)– There’s still time to sign up to strip down and hit the streets to help fight a disease that affects children.

Cupid’s Undie Run is scheduled for Feb. 191 more words