Tags » Neurofibromatosis

A MAS Update: Rachel Mindrup

The Midwest Artist Studios Project has spent the past three years traveling the Midwest interviewing 24 artists from 18 cities/towns. This project has been such a joy to create and to see how these artists have touched the lives of art students through online interactions, emails, and social media. 477 more words

Contemporary Art

2017 Cupid Undie Run – Orlando Preview

Written by Nathan Wertheimer

Downtown Orlando, FL – Have you ever wanted to run in your undies? If you said, yes then come on down to Elixir for all the fun and excitement. 500 more words

Central Florida

Healthcare #2 (Pro)

The Honorable ____________

__________ House Office Building

Washington, DC 20515

Dear Congressman/or Senator ____________:

As someone closely touched by Neurofibromatosis (NF), I write to ask your support of two NF research programs. 429 more words

Funding

What's That On Your Neck?

At first my parents thought it was just a birthmark. As it turned out,  it is a Café-au-lait  spot and I have a genetic disorder called Neurofibromatosis (type 1 ).   1,220 more words

Journal

When unilateral vestibular schwannoma is not due to neurofibromatosis

Revisiting neurofibromatosis type 2 diagnostic criteria to exclude LZTR1-related schwannomatosis.

Smith MJ, Bowers NL, Bulman M, et al.

Neurology 2017; 88:87-92.

Abstract

OBJECTIVE:

To determine the specificity of the current clinical diagnostic criteria for neurofibromatosis type 2 (NF2) relative to the requirement for unilateral vestibular schwannoma (VS) and at least 2 other NF2-related tumors. 176 more words

Neurology

1986: Lab Rats

Knock. Knock. Knock…on the steel motel door. Mom?

Dad springs from his nap and squints through the glass door hole. When will I be tall enough to see through there? 707 more words

Extraordinary Outcomes for an Extraordinary Little Girl: Isabella’s Story

Isabella O’Connell was just 3 months old when her pediatrician noticed ‘cafe au lait’ spots suddenly appearing on her skin. “The spots were appearing at such a rapid pace” said Isabella’s mother, Melissa Kulak. 360 more words