Tags » Neurofibromatosis

Walking on bubble wrap or walking on egg shells?

Have you ever worked or lived somewhere were the mood of just one person affects everyone else? The boss is having a bad day so the atmosphere in the office is awful? 726 more words

Clinical analysis of spinal stereotactic radiosurgery in the treatment of neurogenic tumors


In this study the authors sought to evaluate clinical outcomes after using stereotactic radiosurgery (SRS) to treat benign and malignant spinal neurogenic tumors. 270 more words


This is my 'normal'

This is my ‘normal’

The intense sadness is beginning to ease now. Waves of heaviness still creep up on me at times but I cry, wipes my tears away and face another day with a smile. 586 more words

Neurofibromatosis Awareness

This fall I am participating in the annual NF Event in Los Angeles to raise awareness for this condition.  Neurofibromatosis is a genetic neurological disorder that affects the brain, nerves, skin and spinal cord. 50 more words

Bullies called me 'Tumour Girl' but I'm beautiful the way I am

In Chat magazine, Sophia opens up about how bullies mercilessly teased her for her facial tumour. The 20-year-old was born with neurofibromatosis, which causes growths. Refusing to let it get her down, she simply told them it was her ‘special cheek’. 13 more words

Real Life

My World Begins to Crumble

Fast forward a few years, I am a few years older and I have had a few more surgeries to remove large tumors from various areas in my body.  1,054 more words


Beginning College

It is that time of year again, back to school time.  Students are heading back to school, and some are getting ready to start their college careers.  295 more words