Tags » Neurofibromatosis

24th March 2017 - Blog Diary

Today I wrote this in my diary:

I’ve noticed a change in me since the NF1 diagnosis.  I’m not sure how to express it.  Before I was holding on and being strong and now it feels like I’ve let go, surrendered.  434 more words


Learning That I Don't Have to Tolerate Pain

One of the words that could summarize my life is pain: lots and lots of really bad pain. There have been many periods–years long–during my life where I hurt essentially all of the time. 424 more words

Thoughts And Perspectives

Hello, I'm a mutant.

Yesterday was an awful day. The egg collection is off. Another barrier to having babies has reared its ugly head.

Long story short… It turns out I have Neurofibromatosis, type 1. 739 more words


Chad's 1970 Karmann Ghia

In spring of 2012, while I was in the process of finishing up my 72 convertible Karmann Ghia project, I decided to take on another project for my son Chad. 148 more words

VW Life

Parallel cellular pathways activate the process that controls organ growth

There is an old axiom among cell biologists meant to caution against making assumptions about how certain proteins function, and it involves a hypothetical Martian. If that Martian came to Earth and looked down at a school from its spaceship, it would assume the main job of the school buses is to sit in a parking lot all day, because except for a few hours in the morning and afternoon, that’s all they do. 805 more words


Alberta teen with 3 brain tumours becomes school basketball team's manager

Sherwood Park teenager Ryan Hauck is living his dream of playing basketball, thanks to a supportive coach and teammates.

Ryan’s mom, Kimberley Hauck, said her son just learned learned how to play basketball last year at the… 1,019 more words


A MAS Update: Rachel Mindrup

The Midwest Artist Studios Project has spent the past three years traveling the Midwest interviewing 24 artists from 18 cities/towns. This project has been such a joy to create and to see how these artists have touched the lives of art students through online interactions, emails, and social media. 477 more words

Contemporary Art