Tags » Neurofibromatosis

Me, myself and I - When there's too much inside your head.

Today is World Mental Health Awareness Day, so it’s as good a day as ever for this.

Today I feel great. I spent the day with my daughter, went to the park and in general had a good time, aside from some incredibly stinky nappies I had the honor of changing! 639 more words

And then there were three...

Seeing as I have just been advised that it is ‘blogtober’ it seems like the perfect time for us to get started!

My name is Joanna and I am a first time mummy, to a wonderful little girl called Lily Bernadette. 193 more words


Like a beast trapped inside, I shall not tremble nor shall I hide, I maybe hidden captured by my my own cage, sucummed to my own anger,hatred and my rage, but from my cage I see a view, not seen by all but a selected few, I can see the sunrise before it’s even set, I must learn to control it not fear it or fret, At the moment I still learn, you may not see my fire but inside I burn, I won’t be freed today, tomorrow or the day after,but the tremble I feel one day I will master, I won’t be caged long you do not have the key, its me and me alone who can set me free….


The bitch is back!

Greetings folks!  It’s been a minute but alas I am back.  Since my last post I have been super busy keeping up with a little boy who calls me Mom!   943 more words

Cursed by disease

Amidst the milky waters
My face submerged in calm,
They placed the flowers upon my eyes
To shield me from the harm,
They sprinkled twigs from the forests wood… 84 more words