Tags » Neurofibromatosis

Born with NF, happen to be transgendered MtF, unable to transition because of it.

Basically, I have plexiform neurofibromas in my right foot and my entire back and right rib cage. According to my genetics doctor, this results in me being unable to safely transition via hormones, as it would raise my risk of them turning into sarcomas exponentially. 111 more words


Me, myself and I - When there's too much inside your head.

Today is World Mental Health Awareness Day, so it’s as good a day as ever for this.

Today I feel great. I spent the day with my daughter, went to the park and in general had a good time, aside from some incredibly stinky nappies I had the honor of changing! 639 more words

And then there were three...

Seeing as I have just been advised that it is ‘blogtober’ it seems like the perfect time for us to get started!

My name is Joanna and I am a first time mummy, to a wonderful little girl called Lily Bernadette. 193 more words

Surgical treatment of a large plexiform neurofibroma of the lower extremity

by Jacob Jensen1, David Shofler2*, Della Bennett3

The Foot and Ankle Online Journal 10 (3): 5

Plexiform neurofibromas are benign nerve tumors occurring in approximately 30% of patients with neurofibromatosis type 1. 957 more words