Tags » Pediatric Stroke

The Secret Life of Special Needs Moms

Y’all, being a Special Needs Mom is unique. It’s hard. It’s exhausting. It’s rewarding in its own way. It’s special.

To the outside world, it may seem like we – special needs parents – are steadfast, strong, and unbreakable. 645 more words

Infant Stroke

It's not fair!

Most days and even weeks we as a family play the cards we were dealt. We don’t dwell on what is not fair. This week though so many things have hit me like a ton of bricks. 405 more words

My guilt

I know some parents have guilt not knowing if they could have done things differently and would their child have had a different life. In the NICU they told us right off the bat we couldn’t have done anything to prevent any of this. 312 more words

Stroked

I am a Pediatric Stroke Survivor. Today marks the 13th Anniversary of my left pontine ischemic stroke (I.e., brain stem stroke) which resulted in right side paralysis. 306 more words

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Hydrocephalus

Wyatt’s stroke caused a large blood bleed to block the normal cerebral fluid from running its course through the body. This resulted in hydrocephalus (fluid on the brain) and has no cure yet. 690 more words

Wyatt survived a stroke at two days old

We walked into the NICU and we were scrubbing in with our daughter. She had a gift for her brother and there was one wrapped to her from him. 552 more words

The Double Edged Sword of Looking Good

Appearences aren’t always indicative of reality. A conversation after Sunday Mass with my friend’s family reminded me of the deceptive nature of appearences. We can exude a reality that doesn’t exist. 456 more words

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