Tags » Progressive Bulbar Palsy

Blog -38 - The warm wind of friendship

I am in Dorset after a six hours journey, it was uncomfortable as I haven’t got a bottom! The first night we stayed in a yurt, it had a clear window in the roof, we had a view of the cloudy night, no stars unfortunately but the wood burner kept the atmosphere cosy. 634 more words

Living With MND

Blog 37 -Awareness Evening of MND

Blog 37 – Awareness Night of MND
Last Saturday we had an awareness evening for MND, my friend Angie and her family initiated and did the work. 556 more words

Living With MND

Here's To You Mimi!

My brand new children’s book series, The Flying Mimi, is a work of fiction although the character, Mimi Darlling, was inspired by my mother, BettyJean Short Lee who is Mimi to her four “precious little grand-angels.”When my mother was diagnosed with Progressive Bulbar Palsy,  a rare motor neuron disease, it was my desire to honor her by celebrating the gift of grandparents and the crucial roles they play in our lives. 43 more words

Day 15 - Making Memories

Day 15
We decided last night to get up and about early … We failed but we did get up and about before midday and went explore the modern side of Annecy and the beautiful rivers which feed the lake. 402 more words

Living With MND

Day 19 - The wilderness of Saddleworth Moor

Day 19
An early start as the builder is completing the toilet downstairs now , at last I don’t have to trudge up and down the stairs, it is also a place I can have fluids and foods when strangers are in the house . 489 more words

Living With MND

Day 20 - A quiet space for the mind

Day 20
I sociable day today with an art session with my friend, Ann , we can paint in silence and that is good company for me . 507 more words

Living With MND

Day 21 - Open the gate to new pastures

Day 21
Today was a very sociable day my friend Joy came around for coffee and then I visited a dear friend Ken . Both of these friends know me so well they are so natural with my iPad I feels so normal just having a conversation as we talked about our loves and frustrations. 434 more words

Living With MND