Tags » Rare Disease

Daily Prompt: Volunteer

via Daily Prompt: Volunteer

This word hits me hard especially this month as I continue down my road of helping others.


You see the picture that goes around Facebook of Jimmy Carter in his 90’s battling Cancer and still building houses for the less fortunate. 269 more words

How research on a rare disease turned into a faster way to make stem cells

If Forest Gump were a scientist, I’d like to think he would have said his iconic line a little differently. Dr. Gump would have said, “scientific research is like a box of chocolates – you never know what you’re gonna get.” 561 more words

IPS Cells

On Nerds and Lifesavers

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. 657 more words

How did you make lemonade?

Here at Basket of Lemons we are always looking for guest authors.

Our goal is to share how we make the best in any situation. Taking the lemons life gives you and make lemonade. 50 more words

General Illness

Retaining Positivity with a Rare Disease

In May of 2014, I was diagnosed with a rare disease called PNH (Paroxysmal Nocturnal Hemoglobinuria) after suffering for many months with extreme fatigue, shortness of breath, and mental fogginess. 1,775 more words

Add another headache

Since diagnosis, I’ve come to realize how valuable my time is.

How come I didn’t have this mindset before?  Did I just live my life with my head in the clouds?  274 more words