Tags » Rare Disease

Weird Weather Aside, I Just Keep Plugging Away...

The weather here in Pennsylvania has been weird the past few days. It’s been unseasonably cool plus overcast. Even though my lungs were glued to my chest wall over 10 years ago, I still get sensitive with weird weather cycles. 976 more words

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Tattoos and Chronic Illnesses

Tattoos and piercings used to be considered taboos almost in the United States, but are now approaching a relative norm. Typically people pick something that means a lot to them to put on their skin forever, other just pick pretty things, or there are the occasional inebriated decision that leads to you picking the name of that ex you missed at 2am that you will inevitably regret and get covered up in a month. 1,482 more words

Democracy 3: A Healthy Way To Vent Out Frustration...

I was looking for a few games I could play on my Macbook Air that wouldn’t use a lot of space or memory.

I was intrigued by the fact that there was a political sim game so I decided to give a try. 1,124 more words

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There is No Olympics Of Illness...

I’ve been talking a lot about this subject lately, but this meme just sums the lion’s share on how I feel about things pretty well…. 186 more words

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Nick Valentine Got Annoying So I Threw Him Over For Deacon...

My friends have me playing Fallout4.  It’s fun. I do enjoy it, but I’ve been looking at other things to play too.

I have Fallout Shelter on my phone & ipad & it’s fun, as well as Exploding Kittens on my phone. 294 more words

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Election Day Musing On LA Times Article: Under New Oregon Law, All Eligible Voters Are Registered Unless They Opt Out

Since today is (primary) election day in my state, & I know people of all political stripes, I was looking for an interesting article that would reach to everyone going to vote today & might pique their interest. 152 more words

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Funding and Development: Where Are We Now?

Orphan drugs have been in development since the late 1970s, when advocacy organizations pushed for legislation to help develop treatments for orphan drugs. The Orphan Drug Act allowed for many of the treatments currently on the market to have been researched and developed, and overall the act is considered a ‘success.’ However, there are still so many diseases that desperately need treatments, and here are few reasons why this hasn’t happened. 404 more words

Orphan Drugs