I have to cook everything. Every. thing.
Nothing in our house is processed; it’s too risky. It’s worth it to keep our baby out of the hospital because of accidental ingestion because we missed a label trigger. 403 more words
The European Medicines Agency (EMA) Committee for Orphan Medicinal Products (COMP) held a meeting April 14 – 16, 2015.
At this meeting, there are 13 positive opinions recommending the following medicines for designation as orphan medicinal products. 269 more words
General lack of understanding of rare diseases, insufficient funding mechanisms and options, absence of legislative frameworks are but a few reasons the Asian orphan drugs market has seen minimal advancements. 150 more words
The Orphan Druganaut Blog is honored to have again, Flóra Raffai, the Head of Development from Findacure, as a Guest Blogger. Findacure is a charity which focuses around fundamental diseases – rare, often genetic, diseases from which the basic mechanisms of dysfunction can be extrapolated and applied to our understanding of more common conditions. 381 more words
Is there ever going to be a time in my life where surgery isn’t up for discussion?
I really don’t know what to do. I have had most of the “main” surgeries associated with Cowden Syndrome (thyroidectomy and hysterectomy). 186 more words