Tags » Rare Disease

The Winter Season. 

As we approach December many moments and memories flood into my head. While everyone is full of ‘holiday cheer’ and ready for big family gatherings, feasting and presents, I am reminded that my holiday will be much, much different. 704 more words

Huntingtons Disease

Hearing. Finally?

Tomorrow morning I may or may not go before the Judge in my Disability hearing.

Will you please say a short prayer, or send up good MOJO to the stars for me? 59 more words


(November's) Random Yet Applicable Post

I don’t know that I agree with this Power of Positivity article that I found on Facebook, although it definitely caught my eye.

I’m kind of on the fence on it’s accuracy, but it was an interesting read. 146 more words

Blog Entries

Not the best way to start my Holiday

As some of you know, I am scheduled to go before the Disability Judge next week.  This date was postponed from an earlier date this summer because I had to get new representation. 403 more words


This Slideshow Speaks For Itself

To see the exciting possibilities of 3D printing in medicine, check out this cool slideshow from the Cleveland Clinic:

3D Printing Opens A Window Into The Body

Blog Entries

Article: When You Treat A Rare Patient Like A Common One - Bad Things Happen

I came across this article in Rare Disease Report & it did send chills through my body.

Although, it did not completely surprise me (as horrible as that sounds). 259 more words

Blog Entries

Do you need a fresher-upper?

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. 539 more words