I often come across statements to this effect, “The pharmaceutical industry is not interested in pursuing drug development for Rett Syndrome because the disorder is rare and companies won’t make any money.”323 more words
This is also called Craniofacial duplication.In this disorder, the face of the fetus is duplicated.
They have a single pair of limbs and other organs as a normal individual has, but their head is duplicated…along with their facial features i.e.
I was wandering the newest supermarket to go up in our area yesterday. I was perusing the grab & go/hot food sections (just to see what they had) when I heard some one ask me, “Hey, what’s the battery life on that thing?”. 1,067 more words
Hey everyone. I’ve sort of had a rough week and an even harder weekend. I’m 90% sure I’m going through a new major flare that is causing trouble with my ability to stay awake, walk, stand or pretty much anything you need muscles or energy to do. 87 more words
I know this seems a pretty random post, but it’s not. I tend to vacillate back-and-forth on this subject, often. I’ve hesitated writing about it because I’m sure it will open a can of worms. 1,074 more words
I spoke with my social worker at my transplant center today. He was very helpful with clarifying a few questions I needed to ask about things I had mulled over recently, including if & when I should start to apply for federal disability. 540 more words