Tags » Rare Disease

Movie Review: Over My Dead Body

I really don’t know why this movie didn’t get more acclaim. It was pretty damn awesome. But finding any follow up news took a little digging. 502 more words

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Where rare isn't so rare

It is a profoundly strange experience, going to a place where your (nearly) one-in-a-million condition is common. Strange isn’t bad, it’s just…weird!

Last weekend, nearly 120 people from infants to senior citizens gathered for the 12th Moebius Syndrome Foundation Conference in Long Beach. 137 more words


Trigger warnings: abuse feelings

When I was a young girl
I was invisible because
well I don’t know why
it just was.

I spoke up. 293 more words

Life Coaching - Recovery From Abuse & Trauma

This was hard to watch...

Here’s excerpts from a family video of me on the beach at Lake Michigan when I was about 8 years old, maybe? It was the early 80’s and we weren’t rich, so these do not have sound. 765 more words

Five Years, folks. 7/18/11

Good evening,

I debated whether or not to write tonight.

Right now, I’m sitting in a strange bed. All alone, pondering my life.

Today I took a mental health day, literally. 148 more words


Things we take for granted!!

Victoria has been successful to be able to eat lean roast and steak the past two Sunday’s which is a huge deal because it’s been almost 2 years since she ate beef!! 26 more words

Rare Disease

News Article: 107-Year-Old Becomes Scotland's Oldest Organ Donor

I think this is a cool story.

I know some serious athletes that are older than average that do amazing things like iron man competitions when most people are thinking of just taking a relaxing retirement. 128 more words

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