Tags » Rare Disease

New normal

Yesterday I was diagnosed with gastroparesis basically my stomach is partially paralyzed and can’t process food normally so now I am on a very restrictive diet of liquids, purees and soft foods when tolerable. 279 more words

Gastroparesis

Daily Prompt [Shock]

First off, HAHAHAHHAHHAAAA.

Secondly, this prompt is pretty accurate considering my mood today.  I just spent $50 to fill up my gas tank, and my monthly credit card payment is now up to $250/month.  200 more words

ZHeatherChamp

Cancer and me

I have a funny relationship with cancer. It keeps wanting to crawl into my life. It has a few friends on the inside of my body who are getting the area ready for cancer to grow and be victorious. 193 more words

Rare Disease

Of Pokes and Ports and Pools

It’s been a couple of months now, and I’m pleased to say I am tolerating the new drug, Carfilzomib, brand name Kyprolis, very well. I’m now on the ‘Dara’ (Daratumumab AKA Darzolex) just once a month, but I’m getting the Kyprolis 6 times every three weeks, so I am getting to know my nurses very well! 1,395 more words

My Body Is Strong

5 lbs, 10 lbs, the scale keeps going up… As a woman, is this one of the worst feelings in the world. Especially, when all of your life you have been extremely active and kept physical fitness a priority in your life. 271 more words

Inspirational

Daily Prompt [Static]

Static cling? Static on a radio station? Static in my hair?

Who knows.

But, I can definitely say that my life hasn’t been static these past several years.  109 more words

ZHeatherChamp

The Fire Inside Our Veins

Imagine being told by a doctor that your child has a horrific syndrome – one that you have never heard of and one that will leave your child feeling  like they have been set on fire and  then left with second-degree burns. 1,729 more words

Health