Tags » Rare Disease

Warrior Mom Highlight - Mom Chooses Natural Approach to Treat Her Daughters Sickle Cell Anemia

Warrior Mom Tamika Norman shares her experience with Sickle Cell Anemia.  Her daughter Micah has been diagnosed with Sickle Cell Beta Thalassemia.  Tamika has chosen to take a natural approach to this disease vs the traditional methods of treating Sickle Cell Anemia. 959 more words


Pilot episode of the Podcast!

Hey everyone!

Welcome to the HC&U blog! We are Ben and Lindsey, the hosts of HC&U podcast. This is a place for us to be able to share different links, ideas, and recipes that we talk about on our podcast. 334 more words


Another Bump in the Road! Looking for Suggestions??

As a rare disease patient Sarcoidosis, and Sjogren’s  with a not so rare disease called Parkinson’s, I deal with new symptoms everyday. My days are always filled with excitement. 545 more words

Little Lo

Hey everyone!  Did you miss me?  I know I missed writing and now it’s so hard to find time to actually sit down and write because of Mister Logan but I’m here!  527 more words


Today's news

I’ve heard it said that Cowden Syndrome is “lumps and bumps”.  I don’t know who said that or where I read it, but it’s kind of stuck with me ever since I heard that phrase. 125 more words


How my scent sensitivity led me to hemiplegic migraines, hyperosmia and Mast Cell Activation Syndrome

I was on facebook when someone mentioned head pain as a Mast Cell Activation Syndrome reaction and after I described my experience they asked me if I’d heard of… 803 more words