Tags » Sarcoidosis

My New Oxygen Concentrator Is Less Than Three Pounds And I Love It

I started using oxygen for sleep and exertion in 2007 and at the time I was given those horrendous wine bottle size portable oxygen tanks that weighed a ton and only lasted an hour or two. 447 more words


Could I Be Developing An Allergy To The Cold Or Is This Sarcoidosis Raising Its Ugly Head

For the past couple of weeks, when I come in from the cold, a few minutes after, I get this horrendous prickly feeling all over my torso, neck, jaw line and upper arms. 217 more words


Happy Valentine's Day And A Little Gift To You

It’s that time again for people in love to express their devotion to each other and for single people to be reminded that they are alone. 577 more words


Prednisone Withdrawal Symptoms Worse Than The Actual Side Effects?

Here I go again. I have lost count of how many times I tried to wean myself from Prednisone. I am on this drug now for 10 years, 8 months and 23 days, and I tried to come off of it multiple times, all with disastrous results. 417 more words


The Power Of Unburdened Truth

There are times we don’t talk about my sarcoidosis for weeks at a time. It’s almost as if my disease has just become part of the fabric of our lives. 766 more words


Lofgren's Syndrome

I’ve been diagnosed with an acute case of sarcoidosis. Lofgren’s syndrome. It’s rare.┬áIt causes hot, angry lesions on the legs, arthritic inflammation in the joints, malaise, fatigue, fever… 491 more words