Tags » Sarcoidosis

What Fridays Are Like For Me!

In case you don’t know what this means and probably you don’t…methotrexate is one of the medications I take for my sarcoidosis. It is a chemo drug but taken in lower doses for my disease, with the goal of lowering my whacked out, overactive, high strung auto immune system. 139 more words


Facebook Page Is Back By Popular Demand

They came by the thousands, banging on my virtual door, demanding that I reopen my FaceBook page! Okay, well it wasn't that many, but some of you requested I open back my FaceBook page so you can have the blog posts delivered to your news feeds, and I have succumbed. 12 more words


There's A Big Difference Between Self Preservation and Self Indulgence!

We should always put others first…

No wait, that’s not right, is it?

We should put our own needs ahead of all others!

Okay, hold on a sec…now I’m really confused! 247 more words

What It Is Like To Live With Sarcoidosis

I Have Some Brand New Nasal Cannulas To Give Away

Do you use portable liquid oxygen such as a Helios system that uses nasal cannulas that have double ends for a pulse system? If you do, I just changed my portable system from liquid oxygen to a portable concentrator and I have some brand new, in original packaging nasal cannulas to give away. 69 more words


"Sarcoidosis Sludge"

Sludge is defined as thick, soft, wet mud…perfect description for brain fog!

Brain fog is what I call my “sarcoidosis sludge.”

This so-called sludge feels like your brain has turned into dusty, sticky, confused, gungy, goop. 58 more words

What It Is Like To Live With Sarcoidosis

Flashback Friday: The Nurse

Originally posted to my blog July 31, 2011

I have a real pet peeve with rudeness. It drives me up the wall, especially in the customer service area, and yes, nursing falls under that category too.I have been having a hard time with my breathing in the past couple of days and my chest hurts with every breath. 689 more words


Happy Anniversary to my Husband Karl

Twenty-seven years and going strong. Throughout all of our trials and tribulations we have grown stronger, loved harder and served a wonderful God. My husband Karl McNeill Sr. 42 more words

My Life With Sarcoidosis