Tags » Spina Bifida

Carl Sandburg student uses new tool to turn a challenge into an opportunity

GALESBURG, Illinois– A young man from Galesburg born with Spina Bifida just did something he never dreamed possible thanks to a new tool and his drive to never give up. 482 more words


Calming nerves before surgery

No one likes to hear that they need surgery but unfortunately, some of us have to go through quite a few to keep our health from deteriorating!  900 more words


"Down" Time

I’d like to be the ideal mother, but I am too busy raising my kids


Oh, hi everyone! It is now October 2019. Baby Corbin is now 13 pounds, and 3 months old.

1,078 more words

Things you could be doing that could be making a disabled person's life harder

When you are disabled there are some things you are more aware of than abled person is because you have to be. Since abled people don’t struggle as much as people with physical disabilities sometimes they make the life a person with a physical disability harder with realizing it. 882 more words


#DiversityInLoss - A confusing place to be in the baby loss community

My focus with the Diversity in Loss series is not about just ensuring that each type of loss or each type of voice is catered for, as if it was a tick box exercise. 714 more words

Baby Loss

Luna's Birth Story

Luna was born on May 29th 2019 at 11:21 am. She weighed 7 lbs and 6 oz and was 18 1/2 inches long.

I had a scheduled c-section at 37 weeks. 683 more words

The struggle of shoe shopping with Spina Bifida

Shoe shopping struggles are real when you have a physical disability like Spina Bifida! If you are abled you may find it enjoyable but when you have a physical disability you will find it a little more stressful and slightly less enjoyable. 832 more words